Re-examining a measure of diabetes-related burden in parents of young people with Type 1 diabetes: the Problem Areas in Diabetes Survey - Parent Revised version (PAID-PR).
Re-examining a measure of diabetes-related burden in parents of young people with Type 1 diabetes: the Problem Areas in Diabetes Survey - Parent Revised version (PAID-PR).
复制标题
DOI：
10.1111/j.1464-5491.2011.03434.x
复制
发表时间：
2012-04
期刊：
影响因子：
--
通讯作者：
Laffel LM
中科院分区：
文献类型：
--
作者：
Markowitz JT;Volkening LK;Butler DA;Antisdel-Lomaglio J;Anderson BJ;Laffel LM
在儿科患者中，糖尿病的负担在于家庭。在当前强化胰岛素治疗的时代，感知到的父母负担可能会影响家庭对有效糖尿病管理的努力。本研究的目的是重新检查和修改当前时代与照顾糖尿病儿童相关的感知父母负担的测量。一组来自不同地区的1型糖尿病年轻人（N = 376）及其父母，包括青少年糖尿病研究基金会持续血糖监测研究的参与者和Joslin糖尿病中心的患者。参与者在基线和随访6个月后提供了人口统计学、糖尿病管理、糖尿病特异性家庭冲突和生活质量的数据。青年人12.9±2.7岁，糖尿病病程6.3±3.5年。平均HbA1C为8.0±1.2%(64 mmol/mol)， 58%接受胰岛素泵治疗，年轻人监测血糖5.2±2.3次/天。因子分析得出两个因素，“直接负担”和“理论负担”。糖尿病问题领域调查-家长修订版（PAID-PR）显示出良好的内部一致性（Cronbach 's α = 0.87；因子1 α = 0.78；因子2 α = 0.83）。更大的父母负担与更频繁的血糖监测、更高的HbA1C水平、更大的糖尿病特异性家庭冲突和更低的生活质量相关。重测分析是可接受的（r = 0.62）。付费pr表现出良好的内部一致性，良好的重测信度，并与糖尿病特异性家庭冲突和生活质量相关。这一简短的措施可能在1型糖尿病年轻人的管理中具有临床和研究效用。
In a pediatric patients, the burden of diabetes lies within the family. In the current era of intensive insulin therapy, perceived parental burden may affect the family’s efforts at effective diabetes management. The aims of this study were to re-examine and revise a measure of perceived parental burden associated with caring for a child with diabetes in the current era. A geographically diverse population of young people (N = 376) with Type 1 diabetes and their parents included participants in the Juvenile Diabetes Research Foundation continuous glucose monitoring study and patients from the Joslin Diabetes Center. Participants provided data on demographics, diabetes management, diabetes-specific family conflict, and quality of life at baseline and after 6 months of follow-up. Young people were 12.9 ± 2.7 years old with diabetes duration of 6.3 ± 3.5 years. Mean HbA1C was 8.0 ± 1.2%(64 mmol/mol), 58% received insulin pump therapy, and young people monitored blood glucose 5.2 ± 2.3 times/day. Factor analysis yielded two factors, ‘Immediate Burden’ and ’Theoretical Burden’. The Problem Areas in Diabetes Survey – Parent Revised version (PAID-PR) demonstrated excellent internal consistency (Cronbach’s α = 0.87; factor 1 α = 0.78; factor 2 α = 0.83). Greater parental burden was associated with more frequent blood glucose monitoring, higher HbA1C levels, greater diabetes-specific family conflict, and lower quality of life. Test-retest analysis was acceptable (r = 0.62). The PAID-PR demonstrated excellent internal consistency, good test-retest reliability, and associations with diabetes-specific family conflict and quality of life. This brief measure may have both clinical and research utility in the management of young people with Type 1 diabetes.
登录
查看更多内容
影响因子：
3.5
作者：
Anderson, BJ;Vangsness, L;Laffel, LMB
通讯作者：
Laffel, LMB
影响因子：
3
作者：
Varni, JW;Seid, M;Kurtin, PS
通讯作者：
Kurtin, PS
影响因子：
5.1
作者：
Anderson, B;Ho, J;Laffel, L
通讯作者：
Laffel, L
影响因子：
16.2
作者：
Wysocki, Tim;Harris, Michael A.;White, Neil H.
通讯作者：
White, Neil H.
影响因子：
3.4
作者：
Weissberg-Benchell, Jill;Antisdel-Lomaglio, Jeanne
通讯作者：
Antisdel-Lomaglio, Jeanne