Effectiveness of the Online Daily Diary (ONDIARY) program on family caregivers of advanced cancer patients: A home-based palliative care trial
Effectiveness of the Online Daily Diary (ONDIARY) program on family caregivers of advanced cancer patients: A home-based palliative care trial
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DOI：
10.1016/j.ctcp.2021.101508
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发表时间：
2021-11-13
影响因子：
3
通讯作者：
Tadaka, Etsuko
中科院分区：
文献类型：
--
作者：
Ito, Eriko;Tadaka, Etsuko
目的：对于晚期癌症患者，有许多有效的姑息治疗方案。然而，很少有人知道有效的计划，为家庭照顾者的晚期癌症患者，特别是在家庭为基础的姑息治疗设置。本研究旨在确定的影响，在线每日日记（ONDIARY）计划对家庭照顾者的生活质量（QOL）的晚期癌症患者在家庭为基础的姑息治疗settings.Methods：本研究采用了一个准实验设计与对照组。样本包括60名接受家庭姑息治疗的晚期癌症患者的家庭照顾者（干预组n = 30，对照组n = 30）。干预组被分配到ONDIARY程序除了常规护理，对照组被分配到常规护理。组分配未随机化。ONDIARY计划是一个为期7天的在线日记干预计划，旨在提高情绪能力。结果评估包括可行性评估、主要和次要结果评估。主要和次要结果指标为癌症护理者生活质量指数（CQOLC）和六项Kessler心理困扰量表（K6）。结果：CQOLC评分存在显著的组×时间交互作用（F = 9.324，P = 0.003）。干预组家庭照顾者的CQOLC评分在干预后保持不变，而对照组则有所下降。两组之间的K6评分无显着差异。结论：结果表明，ONDIARY程序，除了通常的护理有可能是有效的预防下降和维持生活质量的家庭照顾者的晚期癌症患者在家庭为基础的姑息治疗设置。
Objectives: There are many effective palliative care programs for patients with advanced cancer. However, little is known about effective programs for family caregivers of patients with advanced cancer, especially in home-based palliative care settings. This study aimed to determine the effect of the Online Daily Diary (ONDIARY) program on the quality of life (QOL) of family caregivers of patients with advanced cancer in home-based palliative care settings.Methods: This study used a quasi-experimental design with a control group. The sample comprised 60 family caregivers (intervention group n = 30, control group n = 30) of patients with advanced cancer receiving home based palliative care. The intervention group was assigned to the ONDIARY program in addition to usual care, and the control group was assigned to usual care. Group allocation was not randomized. The ONDIARY program is a 7-day online diary intervention program that aims to enhance emotional competence. Outcome measures were feasibility assessment, and primary and secondary outcome assessment. Primary and secondary outcome measures were the Caregiver Quality of Life Index-Cancer (CQOLC) and the six-item Kessler Psychological Distress Scale (K6). Repeated measures analysis of variance was performed on each measure, with group and group x time interactions.Results: There was a significant group x time interaction in CQOLC scores (F = 9.324, P = 0.003). The CQOLC scores of family caregivers in the intervention group were maintained after the intervention, whereas those in the control group declined. There was no significant difference in K6 scores between the two groups.Conclusion: The results suggest that the ONDIARY program in addition to usual care has potential to be effective in preventing decline and maintaining QOL of family caregivers of patients with advanced cancer in home-based palliative care settings.