IDEA (Intellectual Disability Exploring Answers): A population-based database for intellectual disability in Western Australia
IDEA (Intellectual Disability Exploring Answers): A population-based database for intellectual disability in Western Australia
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DOI：
10.1080/03014460500075035
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发表时间：
2005-03-01
影响因子：
1.7
通讯作者：
Bower, C
中科院分区：
文献类型：
--
作者：
Petterson, B;Leonard, H;Bower, C
尽管对个人、家庭和社区提出了要求，但智力残疾是一个被忽视的公共卫生领域。流行率的准确估计是稀疏的，范围从0.5%到3.0%。在至少50%的病例中，这种情况的原因是未知的。本文介绍了在西澳大利亚州建立的智力残疾探索答案（IDEA）数据库，为研究提供基础设施，并促进为ID患者提供服务的规划。自1953年以来，在西澳大利亚州，一个拥有195万人口的州，面积为252万公里（2）。目前的IDEA数据库旨在从临床和教育服务提供者那里获得正在进行的基于人口的ID确认，并有可能与其他国家数据库的网络连接。1983年至1996年，西澳大利亚州出生的儿童的平均发病率为每1 000名活产婴儿15.2人，其中50%仅通过教育系统确定。在此期间，60%的病例为男性。在1980 - 1999年出生于西澳大利亚并存活至1年的ID儿童中，30.1%有出生缺陷，与无出生缺陷的人群相比，该组出生缺陷的患病率为6.5（CI 6.3 - 6.8）。
Despite the demands it places on individuals, families and the community, intellectual disability ( ID) is a neglected area of public health. Accurate estimates of prevalence are sparse and range from 0.5 to 3.0%. The cause of the condition is unknown in at least 50% of cases. This paper describes the Intellectual Disability Exploring Answers ( IDEA) database set up in Western Australia to provide an infrastructure for research and to facilitate the planning of service provision for people with ID. Since 1953 a database for ID has been maintained in Western Australia, a state with a population of 1.95 million in an area of 2.52 million km(2). The current IDEA database aims to obtain ongoing population-based ascertainment of ID from providers of clinical and educational services, with the potential for linkage to a network of other state databases. The average prevalence of ID for children born in Western Australia over the years 1983 - 1996 was 15.2 per 1000 live births, with 50% ascertained only through the education system. During this time period 60% of cases were male. Of children with an ID born in Western Australia in 1980 - 1999 and surviving to 1 year, 30.1% had a birth defect, and the prevalence ratio of birth defects in this group compared to the population with no birth defects was 6.5 (CI 6.3 - 6.8).