Describing the psychosocial profile and unmet support needs of parents caring for a child with a life-limiting condition: A cross-sectional study of caregiver-reported outcomes
Describing the psychosocial profile and unmet support needs of parents caring for a child with a life-limiting condition: A cross-sectional study of caregiver-reported outcomes
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DOI：
10.1177/0269216319892825
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发表时间：
2020-02-27
影响因子：
4.4
通讯作者：
Thomas, Kristina
中科院分区：
文献类型：
--
作者：
Collins, Anna;Burchell, Jodie;Thomas, Kristina
背景：在照顾患有生命受限的儿童的父母中，缺乏关于心理社会苦恼的患病率和严重程度的研究。还需要更多的研究来更好地了解这一群体的体验、支持需求和生活质量。目的：描述照顾生命受限儿童的体验和支持需求，并检查父母经历的痛苦程度和生活质量。设计：由咨询组指导的横断面前瞻性定量研究。参与者完成了一项调查，其中包括未得到满足的支持需求的人口统计学和自我报告结果衡量，对照顾的评估，心理痛苦和生活质量。进行了双变量相关分析，以检查测量之间的关联。背景/参与者：父母目前正在照顾一个或多个孩子(
Background:There is a lack of studies examining the prevalence and severity of psychosocial distress in parents caring for a child with life-limiting condition. More research is also needed to better understand the experience, support needs and quality-of-life of this population.Aim:To describe the experience and support needs of caring for children with life-limiting conditions and examine the level of distress and quality-of-life experienced by parents.Design:Cross-sectional, prospective, quantitative study guided by an advisory group. Participants completed a survey that included demographics and self-report outcome measures of unmet support needs, appraisal of caregiving, psychological distress and quality-of-life. Bivariate correlation analyses were performed to examine for associations between measures.Setting/participants:Parents currently caring for one or more children (