Current trends in patient and public involvement in cancer research: A systematic review.
Current trends in patient and public involvement in cancer research: A systematic review.
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DOI：
10.1111/hex.12841
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发表时间：
2019-03
期刊：
影响因子：
--
通讯作者：
Jarden M
中科院分区：
文献类型：
--
作者：
Pii KH;Schou LH;Piil K;Jarden M
全球范围内，患者和公众对健康研究的参与（PPI）正在不断增加。在癌症研究中，PPI 确保诊断、治疗和护理方面的医疗和技术机会的快速发展符合癌症患者的需求和优先事项。对近期 PPI 在癌症研究中的经验、结果和质量的概述将为未来的研究提供有价值的信息。描述 PPI 在癌症研究中的现状，重点关注研究阶段、应用方法、既定目的和结果以及挑战和建议。在 PubMed、CINAHL 和 PsycINFO 上检索了 2006 年 12 月至 2017 年 4 月发表的文献。其中包括描述癌症患者、利益相关者和护理人员作为积极合作伙伴参与研究过程任何阶段的原始研究。纳入了 27 项研究，其中大多数报告了研究早期阶段的 PPI，即在研究主题的定义和优先排序以及招募策略的制定期间。很少有研究报告后期阶段和整个研究过程中的 PPI。仅简要描述了挑战和建议，缺乏对 PPI 流程的批判性反思。 PPI 需要更广泛地整合到癌症研究过程中。应通过更多的批判性反思（包括 PPI 过程的积极和消极经验）来加强 PPI 报告的质量。这将有助于 PPI 的进一步发展及其在癌症研究中的潜力。
Patient and public involvement (PPI) in health research is on the rise worldwide. Within cancer research, PPI ensures that the rapid development of medical and technological opportunities for diagnostics, treatment and care corresponds with the needs and priorities of people affected by cancer. An overview of the experiences, outcomes and quality of recent PPI in cancer research would provide valuable information for future research. To describe the current state of PPI in cancer research focusing on the research stages, applied methods, stated purposes and outcomes, and challenges and recommendations. A search was conducted on PubMed, CINAHL and PsycINFO for literature published from December 2006 to April 2017. Original research studies describing the involvement of cancer patients, stakeholders and carers as active partners at any stage of the research process were included. Twenty‐seven studies were included, the majority reporting PPI at the early stages of research, that is, during the definition and prioritization of research topics and the development of recruitment strategies. Few studies reported PPI at later stages and across the research process. Challenges and recommendations were only briefly described, and critical reflection on the PPI process was lacking. PPI needs to be integrated more broadly in the cancer research process. The quality of reporting PPI should be strengthened through greater critical reflections including both positive and negative experiences of the PPI process. This will contribute to the further development of PPI and its potential in cancer research.
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