APPEALING TO ALTRUISM IS NOT ENOUGH: MOTIVATORS FOR PARTICIPATING IN HEALTH SERVICES RESEARCH
APPEALING TO ALTRUISM IS NOT ENOUGH: MOTIVATORS FOR PARTICIPATING IN HEALTH SERVICES RESEARCH
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DOI：
10.1525/jer.2012.7.3.84
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发表时间：
2012-07-01
影响因子：
1.3
通讯作者：
Phelps, Kerryn
中科院分区：
文献类型：
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作者：
Hunter, Jennifer;Corcoran, Katherine;Phelps, Kerryn
这项试点研究旨在确定参与纵向调查的动机和障碍；我们采访了拟议项目所在的多学科初级保健诊所的患者和从业者。虽然利他主义激励参与医学研究，但我们发现，对于许多潜在参与者来说，直接受益的机会是参与或鼓励参与研究项目的主要动机，有时甚至是唯一动机。患者通常希望从他们的个人结果中获得直接反馈，并且他们希望在将结果转发给其他方（例如他们的从业者）之前获得同意。同样，如果参与使患者直接受益，一些从业者更有可能支持该项目。还确定了影响参与的可接受性以及感知风险和收益的其他因素。需要做更多的工作来了解这些激励因素以及患者如何从参与卫生服务研究中直接受益，特别是在不可能获得直接医疗益处的情况下。
THIS PILOT STUDY SOUGHT TO IDENTIFY motivators and barriers to participating in a longitudinal survey; we interviewed patients and practitioners at a multidisciplinary primary care clinic where the proposed project would be based. While altruism motivates participation in medical research, we found that for many potential participants, the opportunity to benefit directly was the primary, and sometimes the only motive to participate or encourage participation in the research project. Patients often wanted direct feedback from their individual results, and they expected to provide consent before the results were forwarded to other parties such as their practitioners. Similarly, some practitioners were more likely to support the project if participation benefited patients directly. Other factors were also identified that influenced the acceptability and perceived risks and benefits of participating. More work is needed to understand these motivators and how patients might benefit directly from participating in health services research, especially when direct medical benefit is not possible.