Symptom burden in persons with spinal cord injury
Symptom burden in persons with spinal cord injury
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DOI：
10.1016/j.apmr.2007.02.002
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发表时间：
2007-05-01
影响因子：
4.3
通讯作者：
Cardenas, Diane A.
中科院分区：
文献类型：
--
作者：
Jensen, Mark P.;Kuehn, Carrie M.;Cardenas, Diane A.
目的：确定(1)脊髓损伤（SCI）患者的7种症状的频率、严重程度和报告的病程；(2)这些症状与患者功能之间的关系。设计：邮政调查。设置:社区。干预措施：一份调查问卷，包括疼痛、疲劳、麻木、无力、呼吸短促、视力丧失和记忆丧失的频率、严重程度和回忆过程，以及社区整合和心理功能的测量，邮寄给脊髓损伤患者样本。147份可用的调查被退回（回复率，43%的调查被邮寄）。主要观察指标：计算每种症状的出现频率和平均严重程度，并记录每种类型病程的出现频率。分析估计了症状之间的关联，以及症状严重程度与患者功能测量之间的关联。结果：最常见的症状是疼痛、虚弱、疲劳和麻木。据报道，所有的症状都保持不变，或者比他们报告的开始后改善的情况更频繁地恶化。疼痛、虚弱、疲劳和记忆丧失是与患者功能最密切相关的症状。结论：除了损伤本身引起的残疾外，脊髓损伤患者还必须处理一些继发性并发症。在研究的7种症状中，疼痛、虚弱和疲劳似乎是最常见的，与患者的社会和心理健康功能联系最密切。需要进行研究，以确定脊髓损伤患者的感知症状与生活质量之间的因果关系，并确定对那些显示影响患者功能的症状的有效治疗。
Objective: To determine (1) the frequency, severity, and reported course of 7 symptoms in persons with spinal cord injury (SCI) and (2) the association between these symptoms and patient functioning.Design: Postal survey.Setting: Community.Intervention: A survey that included measures of the frequency, severity, and recalled course of pain, fatigue, numbness, weakness, shortness of breath, vision loss, and memory loss, as well as a measure of community integration and psychologic functioning was mailed to a sample of persons with SCI. One hundred forty-seven usable surveys were returned (response rate, 43% of surveys mailed).Main Outcome Measures: The frequency and average severity of each symptom was computed, and the frequencies of each type of reported course were noted. Analyses estimated the associations among the symptoms, and between symptom severity and measures of patient functioning.Results: The most common symptoms were pain, weakness, fatigue, and numbness. All symptoms were reported to remain the same or to get worse more often than they were reported to improve once they began. Pain, weakness, fatigue, and memory loss were the symptoms most closely associated with patient functioning.Conclusions: Patients with SCI must deal with a number of secondary complications in addition to any disability caused by the injury itself. Of 7 symptoms studied, pain, weakness, and fatigue appeared to be most common and most closely linked to patient social and mental health functioning. Research is needed to identify the causal relationships between perceived symptoms and quality of life in patients with SCI and to identify effective treatments for those symptoms shown to impact patient functioning.