Family members of cancer patients: Needs, quality of life and symptoms of anxiety and depression
Family members of cancer patients: Needs, quality of life and symptoms of anxiety and depression
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DOI：
10.3109/0284186x.2010.529821
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发表时间：
2011-02-01
期刊：
影响因子：
3.1
通讯作者：
Gunnarsdottir, Sigridur
中科院分区：
文献类型：
--
作者：
Fridriksdottir, Nanna;Saevarsdottir, Porunn;Gunnarsdottir, Sigridur
背景癌症患者的家属有多种需求，其中许多需求没有得到充分满足。未满足的需求可能会影响心理困扰和生活质量（QOL）。本研究的目的是评估需求和未满足的需求，生活质量，焦虑和抑郁症状，以及这些变量之间的关系，在一个大样本的癌症患者的家庭成员在不同阶段的疾病。材料和方法。在332名家庭成员中，330人接受了研究，223人（67%）完成了横断面描述性研究。采用家庭需求量表（FIN）、生活质量量表（QOLS）和医院焦虑抑郁量表（HADS）进行数据收集。结果在评估的20项需求中，重要需求和未满足需求的平均数分别为16.4 +/- 4.3和6.2 +/- 5.6。40-56%的样本中有12项重要需求未得到满足。妇女未满足需求的平均数明显高于男子，其他亲属明显高于配偶，年轻家庭成员、目前有工作的人和转移性癌症患者的平均数明显高于男子。生活质量与健康人群和晚期癌症护理人员的报告相似。焦虑和抑郁症状的患病率很高（20-40%）。女性的焦虑评分高于男性，与诊断后第一年和五年以上相比，焦虑和抑郁评分在1-5年期间最高。重要需求数量与生活质量呈正相关，需求满足与生活质量呈正相关。此外，焦虑和未满足的需求之间存在显着关系。最后，生活质量与焦虑和抑郁症状之间存在显著相关。结论研究结果支持了癌症患者家属在疾病的各个阶段进行筛查需求和心理困扰的重要性。
Background. Family members of cancer patient's have multiple needs, many of which are not adequately met. Unmet needs may affect psychological distress and quality of life (QOL). The purpose of this study was to assess needs and unmet needs, QOL, symptoms of anxiety and depression, and the relationship between those variables in a large sample of family members of cancer patients in different phases of illness. Material and methods. Of 332 family members invited to participate, 330 accepted and 223 (67%) completed a cross-sectional, descriptive study. Data was collected with the Family Inventory of Needs (FIN), Quality of Life Scale (QOLS) and the Hospital Anxiety and Depression Scale (HADS). Results. Of 20 needs assessed the mean (SD) number of important needs and unmet needs was 16.4 +/- 4.3 and 6.2 +/- 5.6, respectively. Twelve important needs were unmet in 40-56% of the sample. The mean number of unmet needs was significantly higher among women than men, other relatives than spouses, younger family members, those currently working and those of patients with metastatic cancer. QOL was similar to what has been reported for healthy populations and cancer caregivers in advanced stages. The prevalence of symptoms of anxiety and depression was high (20-40%). Anxiety scores were higher among women than men and both anxiety and depression scores were highest during years 1-5 compared to the first year and more than five years post diagnosis. There was a positive relationship between number of important needs and QOL, and between needs met and QOL. Additionally, there was a significant relationship between anxiety and unmet needs. Finally, there was a significant relationship between QOL and symptoms of anxiety and depression. Conclusion. The results support the importance of screening needs and psychological distress among family members of cancer patients in all phases of illness.