Psychosocial standards of care for children with cancer and their families: A national survey of pediatric oncology social workers
Psychosocial standards of care for children with cancer and their families: A national survey of pediatric oncology social workers
复制标题
DOI：
10.1080/00981389.2018.1441212
复制
发表时间：
2018-01-01
影响因子：
2.2
通讯作者：
Wiener, Lori
中科院分区：
文献类型：
--
作者：
Jones, Barbara;Currin-Mcculloch, Jennifer;Wiener, Lori
2015年，一个由心理社会专家组成的跨学科小组制定了《癌症儿童及其家庭心理社会护理标准》。本文介绍了一项全国性的儿科肿瘤社会工作者调查的数据，以及他们在为儿童和家庭提供心理社会护理方面的经验。来自81家癌症机构的107名社会工作者参加了一项25项在线调查，反映了心理社会护理的15项标准。社会工作参与者报告说，在大多数接受调查的癌症中心，主要由社会工作者和儿童生活专家提供心理社会支持，解决癌症诊断，治疗和过渡到生存或临终关怀和丧亲之痛的适应问题。虽然社会工作者报告说，他们在整个癌症发展过程中提供了全面的服务，但2015年的许多标准并没有得到系统的实施。需要改进的领域包括为心理社会支持人员和方案提供资金，纳入标准化评估措施，评估整个治疗过程中及以后的经济负担，始终如一地获得心理学和精神病学服务，为父母和兄弟姐妹提供综合护理，以及从诊断开始更多地纳入姑息治疗服务。
In 2015, an interdisciplinary group of psychosocial experts developed The Standards of Psychosocial Care for Children with Cancer and Their Families. This paper presents data from a national survey of pediatric oncology social workers and their experiences in delivering psychosocial care to children and families. In total, 107 social workers from 81 cancer institutions participated in a 25-item online survey that mirrored the 15 Standards for Psychosocial Care. Both closed and open-ended questions were included.Social work participants reported that psychosocial support is being provided at most cancer centers surveyed, primarily by social workers and child life specialists, addressing adaptation to the cancer diagnosis, treatment, and transitions into survivorship or end-of-life care and bereavement. While social workers reported offering comprehensive services throughout the cancer trajectory, many of the 2015 Standards are not being systematically implemented. Areas for improvement include funding for psychosocial support staff and programs, incorporation of standardized assessment measures, assessment for financial burden throughout treatment and beyond, consistent access to psychology and psychiatry, integrated care for parents and siblings, and more inclusion of palliative care services from time of diagnosis.