Validation of a quality-of-life measure for deaf or hard of hearing youth.

Validation of a quality-of-life measure for deaf or hard of hearing youth.
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DOI:
10.1177/0194599810397604
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发表时间:
2011-07
期刊:
Otolaryngology--head and neck surgery : official journal of American Academy of Otolaryngology-Head and Neck Surgery
影响因子:
--
通讯作者:
Sie KS
Sie KS
中科院分区:
其他
文献类型:
--
作者:
Patrick DL;Edwards TC;Skalicky AM;Schick B;Topolski TD;Kushalnagar P;Leng M;O'Neill-Kemp AM;Sie KS

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针对听力损失青少年的生活质量(QOL)测量在人口需求评估、教育安置以及项目设计和评估中是有用的。本研究旨在评估青少年生活质量量表-聋人及重听者模组(YQOL-DHH)的横断面效度。仪器开发和横截面调查。通过学校、专业组织、诊所和聋人或听力困难青年项目招募。对230名11至18岁的青少年进行了35项候选项目:49%为女性,61%为白色,11%为轻度听力损失,20%为中度/中重度,41%为重度/极重度,28%为人工耳蜗植入者。参与者通过纸和笔(58%),基于网络的英语(29%),美国手语(ASL)或Pidgin Signed English(PSE)(9%)或采访者监督的ASL或PSE DVD(4%)完成了个人或团体管理的问卷。儿童抑郁量表(CDI-S)也已完成。因素结构,信度,结构效度和受访者负担进行了评估。最终的调查问卷保留了32个条目,涵盖3个领域:自我接纳/倡导(14个条目,Cronbach α = 0.84)、感知耻辱(8个条目,Cronbach α = 0.85)和参与(10个条目,Cronbach α = 0.86)。生活质量与听力水平无显著相关。一周的重测系数是可以接受的:自我接纳/宣传(0.70),感知的耻辱(0.78)和参与(0.92)。正如预测的那样,CDI-S总分与所有YQOL-DHH领域在适当的方向上相关(P < .0001)。完成纸笔版本的时间为12分钟。YQOL-DHH对青少年听力特异性生活质量评价具有良好的信度和效度。
Quailty-of-life (QOL) measures targeting youth with hearing loss are useful in population needs assessment, educational placement, and program design and evaluation. This study assesses the cross-sectional validity of the Youth Quality of Life Instrument–Deaf and Hard of Hearing Module (YQOL-DHH). Instrument development and cross-sectional survey. Recruitment through schools, professional organizations, clinics, and programs for youth who are deaf or hard of hearing. Thirty-five candidate items were administered to 230 adolescents aged 11 to 18 years: 49% female, 61% white, 11% mild hearing loss, 20% moderate/moderate-severe, 41% severe/profound, and 28% with cochlear implants. Participants completed individual or group-administered questionnaires by paper and pencil (58%), Web-based English (29%), American Sign Language (ASL) or Pidgin Signed English (PSE) (9%) on DVD, or interviewer-supervised ASL or PSE DVD (4%). The Children's Depression Inventory (CDI-S) was also completed. Factor structure, reliability, construct validity, and respondent burden were assessed. Thirty-two Items were retained in the final instrument covering 3 domains: seif-acceptance/advocacy (14 items, Cronbach α = 0.84), perceived stigma (8 items, Cronbach α = 0.85), and participation (10 items, Cronbach α = 0.86). QOL was not significantly associated with hearing level. One-week test-retest coefficients were acceptable: self-acceptance/advocacy (0.70), perceived stigma (0.78), and participation (0.92). As predicted, the total CDI-S score was associated in the appropriate direction (P < .0001) with all YQOL-DHH domains. Time to complete the paper-and-pencil version was 12 minutes. The YQOL-DHH shows good reliability and validity for assessing hearing-specific QOL in adolescents.
DOI: 10.1023/b:soci.0000007495.40790.85
发表时间: 2004-04-01
影响因子: 3.1
作者:
Gilman, R;Easterbrooks, SR;Frey, M
通讯作者: Frey, M
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发表时间: 1981-01-01
影响因子: 1.4
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DOI: 10.1093/deafed/eni027
发表时间: 2005-09-01
影响因子: 2
作者:
Nunes, T;Pretzlik, U;Ilicak, S
通讯作者: Ilicak, S
DOI: 10.1067/mhn.2000.110364
发表时间: 2000-11-01
影响因子: 3.4
作者:
Stewart, MG;Coker, NJ;Bautista, MH
通讯作者: Bautista, MH
DOI: 10.1080/010503901300007047
发表时间: 2001-01-01
期刊: SCANDINAVIAN AUDIOLOGY
影响因子: --
作者:
Karinen, PJ;Sorri, MJ;Löppönen, HJ
通讯作者: Löppönen, HJ