Parental duties and untreatable genetic conditions
Parental duties and untreatable genetic conditions
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DOI：
10.1136/jme.26.5.400
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发表时间：
2000-10-01
影响因子：
4.1
通讯作者：
Clarkeburn, H
中科院分区：
文献类型：
--
作者：
Clarkeburn, H
本文考虑了父母的善意和非恶意义务，对无法治疗的疾病使用产前基因检测。有人建议，只有当测试对于保护儿童的利益至关重要时，即只有当孩子出生时存在比不存在更糟糕的生活的风险时，这才可以是适当的。有人认为，可以理性地选择不存在而不是严重受损的生活。无法控制的疼痛和缺乏发展持续自我的机会被认为是这种偏好的充分标准。当父母面临生下孩子的生活比不存在更糟糕的风险时，父母有一项令人遗憾的产前检查和终止受影响妊娠的责任。此外，这种义务不适用于所产生的生活可以被认为比不存在更好的盟友条件。
This paper considers parental duties of beneficence and non-maleficence to use prenatal genetic testing for non-treatable conditions. It is proposed that this can be a duly only if the testing is essential to protect the interests of the child ie only if there is a risk of the child being born to a life worse than non-existence, It is argued hen that non-existence can be rationally preferred to a severely impaired life. Uncontrollable pain and a lack of any opportunity to develop a continuous self are considered to be sufficient criteria for such preference. When parents are at risk of having a child whose life would be worse than non-existence, the parents have a dirty to rue prenatal testing and a duty, to terminate an affected pregnancy Further, such duty does not apply to ally conditions where the resulting life can be considered better than non-existence.