International Classification of Functioning, Disability and Health Core Set construction in systemic sclerosis and other rheumatic diseases: a EUSTAR initiative
International Classification of Functioning, Disability and Health Core Set construction in systemic sclerosis and other rheumatic diseases: a EUSTAR initiative
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DOI：
10.1093/rheumatology/kes185
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发表时间：
2012-12-01
期刊：
影响因子：
5.5
通讯作者：
Distler, Oliver
中科院分区：
文献类型：
--
作者：
Saketkoo, Lesley Ann;Escorpizo, Reuben;Distler, Oliver
目标。概述风湿病专家能够在国际功能、残疾和健康分类（ICF）框架下开发特定疾病核心集的基本原理和潜在策略。ICF是世界卫生组织（WHO）引入的一个通用框架，用于描述和量化与损伤/残疾相关的健康状况对功能的影响和负担。EULAR硬皮病临床试验和研究与ICF研究部门共同努力，为硬皮病开发一种ICF语言。从我们的Medline文献综述中，使用ICF的缩写和拼写版本，我们为核心集的发展步骤集合了方法和方法推理。ICF可用于病人护理和决策，以及提供资源、服务和资金。ICF在机构、区域、国家和全球各级使用。现在有几种疾病具有ICF核心集。患有复杂风湿病的患者将受益于特定疾病的ICF核心集，并应纳入所有发展阶段。风湿病ICF核心集的开发可以从一些可行的策略进行。这一概述应有助于澄清导致制定ICF核心集的有用过程，并为考虑这一努力的专家组提供一个平台。
Objectives. To outline rationale and potential strategies for rheumatology experts to be able to develop disease-specific Core Sets under the framework of the International Classification of Functioning, Disability and Health (ICF). ICF is a universal framework introduced by the World Health Organization (WHO) to describe and quantify the impact and burden on functioning of health conditions associated with impairment/disability.Methods. A combined effort of the EULAR Scleroderma Clinical Trial and Research and the ICF Research Branch was initiated to develop an ICF language for scleroderma. From our Medline literature review, using the abbreviation and spelled out version of ICF, we assembled approaches and methodological reasoning for steps of core set development.Results. The ICF can be used for patient care and policy-making, as well as the provision of resources, services and funding. The ICF is used on institutional, regional, national and global levels. Several diseases now have ICF Core Sets. Patients with complex rheumatologic diseases will benefit from a disease-specific ICF Core Set and should be included in all stages of development. ICF Core Set development for rheumatic diseases can be conducted from a number of feasible strategies.Conclusion. This overview should help to clarify useful processes leading to development of an ICF Core Set, and also provide a platform for expert groups considering such an endeavour.