The economic burden incurred by families caring for a young child with developmental disability in Uganda.
The economic burden incurred by families caring for a young child with developmental disability in Uganda.
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DOI：
10.1371/journal.pgph.0000953
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发表时间：
2023
期刊：
影响因子：
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通讯作者：
Greco, Giulia
中科院分区：
文献类型：
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作者：
Katumba, Kenneth R;Tann, Cally J;Webb, Emily L;Tenywa, Patrick;Nampijja, Margaret;Seeley, Janet;Greco, Giulia
每年，全球有近3 000万儿童因新生儿健康状况而面临发育困难和残疾的风险，其中大多数生活在资源有限的国家。这项研究估计了乌干达家庭照顾发育残疾幼儿的年度费用。嵌套在一个可行性试验的早期护理和支持幼儿发育障碍，这个子研究估计疾病的成本，父亲遗弃的照顾者的成本和照顾家庭的负担能力。73名护理人员参加了这项子研究。家庭的年均疾病费用为949美元。主要的成本驱动因素是寻求护理的费用和因失业而损失的收入。照顾残疾儿童的家庭花费超过全国平均家庭支出，所有家庭每年的疾病费用超过全国人均国内生产总值的100%。此外，84%的照顾者面临经济后果，并采取减少财富的应对策略。照顾严重残疾儿童的家庭比照顾轻度或中度残疾儿童的家庭平均多花费358美元。父亲遗弃很常见（31%），受影响的母亲平均损失430美元的经济支持。照顾一个有发育障碍的幼儿是所有研究家庭负担不起的。早期护理和支助方案有可能减少这些财务影响。国家必须努力遏制这种灾难性的卫生支出。
Each year, nearly 30 million children globally are at risk of developmental difficulties and disability as a result of newborn health conditions, with the majority living in resource-constrained countries. This study estimates the annual cost to families related to caring for a young child with developmental disability in Uganda. Nested within a feasibility trial of early care and support for young children with developmental disabilities, this sub-study estimated the cost of illness, the cost of paternal abandonment of the caregiver and the affordability of care by household. Seventy-three caregivers took part in this sub-study. The average annual cost of illness to families was USD 949. The main cost drivers were the cost of seeking care and income lost due to loss of employment. Households caring for a child with a disability spent more than the national average household expenditure, and the annual cost of illness for all households was more than 100% of the national GDP per capita. In addition, 84% of caregivers faced economic consequences and resorted to wealth-reducing coping strategies. Families caring for a child with severe impairment incurred USD 358 more on average than those with mild or moderate impairment. Paternal abandonment was common (31%) with affected mothers losing an average of USD 430 in financial support. Caring for a young child with developmental disability was unaffordable to all the study households. Programmes of early care and support have the potential to reduce these financial impacts. National efforts to curb this catastrophic health expenditure are necessary.