An Interdisciplinary Outreach Model of African American Recruitment for Alzheimer's Disease Research

An Interdisciplinary Outreach Model of African American Recruitment for Alzheimer's Disease Research
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DOI:
10.1093/geront/gnq098
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发表时间:
2011-06-01
期刊:
影响因子:
5.7
通讯作者:
Morris, John C.
Morris, John C.
中科院分区:
医学1区
文献类型:
--
作者:
Williams, Monique M.;Meisel, Marie M.;Morris, John C.

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目的:非裔美国人外展卫星(卫星)提供教育外展,以促进非裔美国人在华盛顿大学阿尔茨海默病研究中心(ADRC)进行纵向研究的招募。这篇描述性文章描述了卫星项目的招聘方法、社区参与计划、招聘工作的结果以及复制的潜力。设计和方法:该卫星制定了一项全面的外联和招聘计划,以确定和解决参与研究的障碍。该卫星为卫生保健提供者开展社区外展和招聘方案以及培训。结果:在实施招募计划后,参加所有ADRC研究的认知健康和轻度痴呆的非裔美国人的人数增加了。目前非裔美国人参与ADRC研究的比例包括:腰椎穿刺39%,匹兹堡化合物- b正电子发射断层扫描43%,磁共振成像52%,载脂蛋白E基因型检测95%,临床和认知评估100%。影响:卫星项目减少了参与研究的障碍,通过与参与者及其家人的持续互动鼓励保留研究,并与社区组织和照顾非裔美国老年人的卫生专业人员建立持久的伙伴关系。
Purpose: The African American Outreach Satellite (Satellite) provides educational outreach to facilitate African American recruitment for longitudinal studies at the Washington University Alzheimer's Disease Research Center (ADRC). This descriptive article characterizes the Satellite's recruitment methods, plan for community engagement, results of recruitment efforts, and potential for replication. Design and Methods: The Satellite developed a comprehensive outreach and recruitment plan that identifies and addresses barriers to research participation. The Satellite conducts community outreach and recruitment programs and training for health care providers. Results: Enrollment of cognitively healthy and mildly demented African Americans for participation in all ADRC studies increased following implementation of the recruitment plan. Current African American participation rates for ADRC studies include 39% for lumbar puncture, 43% for positron emission tomography with Pittsburgh Compound-B, 52% for magnetic resonance imaging, 95% for apolipoprotein E genotype testing, and 100% for clinical and cognitive assessment. Implications: The Satellite reduces barriers to research participation, encourages retention through sustained interactions with participants and their families, and develops lasting partnerships with community organizations and health professionals who care for African American elders.