'Swimming against the tide' - the influence of fertility matters on the transition to adulthood or survivorship following adolescent cancer
'Swimming against the tide' - the influence of fertility matters on the transition to adulthood or survivorship following adolescent cancer
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DOI：
10.1111/j.1365-2354.2009.01118.x
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发表时间：
2010-09-01
影响因子：
2.1
通讯作者：
Sloper, P.
中科院分区：
文献类型：
--
作者：
Crawshaw, M. A.;Sloper, P.
与癌症相关生育能力的社会心理研究集中在生育能力或成人幸存者的担忧上。这项研究报告了其迄今未报告的影响，从诊断到生存。招募了一项探索性的定性研究，被诊断为青少年的38名男性和女性被诊断为青少年。分析使用恒定比较方法，在寿命方法中概念上考虑。癌症治疗后果影响或受到影响的四个关键经验受到影响或影响：（1）优先考虑“正常”和边缘化的生育能力； （2）生育涉及损害“正常性”的危害； （3）持续的障碍/健康涉及介导生育率事项的问题； （4）生育能力涉及癌症遗产的主导地位。专业和社交网络几乎没有机会提出问题，接收信息，处理感受或制定处理策略。关于生育损害程度的信念不一定与收到的信息有关。对于某些人来说，生育能力影响了身份，福祉和生活计划以及生殖功能。这不仅限于自治疗结束以来的特定年龄，生活阶段，性别或时间，并因相关的污名和沉默而加剧。鉴于生育能力的心理和社会和医学意义，应定期提供对话的机会。
Psychosocial research into cancer-related fertility has concentrated on fertility preservation or adult survivors' concerns. This study reports on its hitherto unreported impact over the time from diagnosis to survivorship. Thirty-eight men and women aged < 30, diagnosed as teens, were recruited to an exploratory qualitative study. Analysis used the constant comparison method, considered conceptually within a lifespan approach. Four key experiences of managing fertility matters influenced, or were influenced by, the aftermath of cancer treatment: (1) prioritising 'normality' and marginalising fertility; (2) fertility concerns compromising 'normality'; (3) ongoing impairments/health concerns mediating fertility matters; (4) fertility concerns dominating the cancer legacy. Professional and social networks provided few opportunities to ask questions, receive information, process feelings or develop handling strategies. Beliefs about the extent of fertility damage did not necessarily relate to information received. For some, fertility matters affected identity, well-being and life planning as well as reproductive function. This was not restricted to particular ages, life stages, gender or time since treatment ended and was heightened by associated stigma and silence. Opportunities for dialogue should be offered regularly across health and social work disciplines given fertility's psychological and social as well as medical significance.