World Wide Web: Opportunities, challenges, and threats
World Wide Web: Opportunities, challenges, and threats
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DOI：
10.1191/096120399680411434
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发表时间：
1999-01-01
期刊：
影响因子：
2.6
通讯作者：
Edworthy, SM
中科院分区：
文献类型：
--
作者：
Edworthy, SM
互联网提供了新的机会，收集有关人口的信息，并可能提供替代传统的方法进行临床试验的系统性红斑狼疮。在过去十年中，“万维网-www”得到了广泛的发展，估计到2005年将有超过10亿人上网。利用互联网技术通知、招募和评估病人已经是这种电子媒介的潜在用途。然而，完全依赖互联网可能会导致对狼疮患者的偏见抽样。低收入或失业妇女上网的可能性较小。有神经缺陷的人可能在有效使用互联网方面有困难。在网络上收集的数据可能不具有高的可靠性，并且需要完成许多工作来确定来自此源的信息的心理测量学特性。要应对的最大威胁之一是在使用电子通信时保护患者信息的机密性。在任何尝试使用互联网进行临床试验时，必须高度重视防止无意或非故意发布信息的保障措施。应特别注意电子邮件信息，这些信息有可能被拦截或发送给未经许可查看患者信息的个人。尽管如此，还必须考虑安全措施对系统性能造成的成本，并与具有适当权限的人员访问的需求进行平衡。对狼疮研究领域感兴趣的临床医生和科学家需要及时了解正在迅速增加的信息。这篇文章列出了现在可以访问的网站。
The Internet provides new opportunities to gather information on the population and may provide alternatives to the traditional methods of conducting clinical trials in systemic lupus erythematosus. The 'world wide web-www' has grown extensively in the past decade and it is estimated that there will be over 1 billion individuals an the net by the year 2005.Notifying, recruiting and assessing patients using Internet technology are already potential uses of this electronic medium. However, total reliance on the Internet could lead to biased sampling of patients with lupus. Women with low incomes or who are unemployed are less likely to have access to the Internet. individuals with neurological deficits may have trouble using the Internet effectively. Data collected on the web may not have high reliability and much work needs to be completed to determine the psychometric properties of information derived from this source.One of the greatest threats to contend with is protecting the confidentiality of patient information when using electronic communication. Safeguards against inadvertent or unintended release of information must receive high priority in any attempt to use the Internet for clinical trials. Particular attention should be paid to email messages, which have the potential to be intercepted or sent to individuals without clearance to see patient information. Nevertheless, the costs to systems performance caused by security measures must also be considered and balanced against the need for access by those with appropriate authority.A number of websites already exist for the benefit of patients and providers. Clinicians and scientists interested in the field of lupus research will need to keep up to date on the rapidly proliferating information that is becoming available. This article lists sites which can be visited now.