Growth curve modeling of virtual events and online engagement in a palliative care peer support online health community for adolescents and young adults.
Growth curve modeling of virtual events and online engagement in a palliative care peer support online health community for adolescents and young adults.
复制标题
青少年和年轻人姑息护理同伴支持在线健康社区中虚拟事件和在线参与的增长曲线建模。
DOI：
10.1093/jamia/ocac252
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发表时间：
2023
期刊：
影响因子：
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通讯作者：
Livingston,MelvinD
中科院分区：
文献类型：
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作者：
Walker,AndrewL;Swygert,Anna;Marchi,Emily;Lebeau,Kelsea;Haardörfer,Regine;Livingston,MelvinD
在线健康社区（OHC）已被确定为患有慢性病的青少年和年轻人（AYAs）的社会支持和社区联系的重要渠道。尽管有明显的好处，但在OHC内最大化持续患者参与的方法研究方面仍然存在差距。这项研究评估了随着时间的推移，每名患者的每日评论率，以及与项目工作人员和志愿者促进的事件和engagement.Materials和MethodsWe利用从662每日患者，志愿者和工作人员的评论总数通过在UF健康路灯游戏和在线团队的街灯托管的不和谐服务器内的数据，2019年1月和2022年1月之间。多层次的模型被用来评估每名患者的每日评论率和检查协会与OHC水平的预测工作人员和志愿者促进日常和季节性的事件，以及每日活跃users.ResultsPerpatient评论率显示出整体负斜率随着时间的推移，在大多数模型。未经调整和调整的增长曲线模型显示，每日事件（β = 0.21），季节性事件（β = 0.18），和总的每日活跃用户（β = 0.09）都显着相关的增加，在每个病人的每日评论rate.DiscussionResults表明，社会事件促进策略可以应用于增加AYA患者参与OHC。季节性活动和工作人员和志愿者的参与可能是保持长期patients.ConclusionOur的研究结果之间的参与的有效手段突出的重要性，工作人员和志愿者的存在在OHC在驾驶长期的病人参与，并在考虑病人的需求和观点，在发展OHC功能。
ObjectiveOnline health communities (OHCs) have been identified as important outlets for social support and community connection for adolescents and young adults (AYAs) living with chronic illnesses. Despite evident benefits, there remains a gap in research on methods to maximize sustained patient engagement within OHCs. This study assessed per-patient daily commenting rates over time, as well as associations with program staff and volunteer-facilitated events and engagement.Materials and MethodsWe utilized data from 662 daily patient, volunteer, and staff comment totals within a Discord server hosted through the Streetlight at UF Health Streetlight Gaming and Online Team, between January 2019 and January 2022. Multilevel models were used to assess per-patient daily commenting rates and examine associations with OHC-level predictors of staff and volunteer-facilitated daily and seasonal events, as well as the number of daily active users.ResultsPer-patient comment rates showed an overall negative slope with time in most models. Unadjusted and adjusted growth curve models showed that daily events (β = .21), seasonal events (β = .18), and total daily active users (β = .09) were all significantly associated with increases in per-patient daily comment rates.DiscussionResults suggest that social event facilitation strategies can be applied to increase AYA patient engagement in OHCs. Seasonal events and staff and volunteer engagement may be the effective means of maintaining engagement among long-term patients.ConclusionOur findings highlight the importance of staff and volunteer presence in OHCs in driving long-term patient engagement and in considering patient needs and perspectives in developing OHC features.