3511 Adapting Community Engagement Studios to Accommodate Participants from Diverse and Rural/Frontier Communities
3511 Adapting Community Engagement Studios to Accommodate Participants from Diverse and Rural/Frontier Communities
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DOI：
10.1017/cts.2019.190
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发表时间：
2019-03-27
影响因子：
2.6
通讯作者：
Stark LA
中科院分区：
文献类型：
--
作者：
Coulter BH;Witte B;Stark LA
目标/具体目标：我们在开发社区参与工作室模型的适应性方面的目标是：（1）使调查人员能够咨询尽可能广泛的社区“专家”，（2）使来自农村和边境地区的利益相关者能够参与工作室，（3）为来自面临健康差距的社区的利益相关者创造一个安全的环境，他们参与研究的程度很低，以及（4）使利益相关者能够用他们最熟悉的语言发言。方法/研究人群：我们使用了几种策略，使研究人员能够从农村和边境地区的利益相关者那里获得投入。如果研究的重点是农村人口，我们将工作室放在一个中心位置，通常是在一个私人房间的餐厅，如果这是可用的。如果调查人员想要听取农村和城市居民的意见，当个人有足够的带宽来支持和/或对使用该技术感到满意时，我们会通过Skype或FaceTime使用视频会议。对于那些拨号上网或没有互联网接入的人，我们提供电话会议线路信任关系对于创造一个安全的空间至关重要，在这个空间中，面临健康差异的社区的利益相关者可以为研究人员提供咨询。当研究人员希望与来自一个种族/民族社区的利益相关者进行咨询时，我们会与该社区的领导人或受信任的成员签订合同，以招募适当的利益相关者。该工作室由一名CCET工作人员和一名社区领导人共同主持，使用社区首选的语言，领导人为CCET工作人员翻译。对于涉及来自多个社区的利益相关者并以英语进行的工作室，我们在适当的情况下提供翻译。使用翻译的利益相关者可能与其他Studio参与者一起出现在会议室中，也可能正在打电话。结果/预期结果：在我们举办的35个工作室中，有5个是在农村地区举办的，另外5个包括一个或多个农村/边境利益攸关方通过电话或视频会议参与。六个工作室与社区领导人共同协调，另外四个工作室包括翻译。我们用英语举办的几乎所有工作室都包括代表不同社区的个人。在Studios结束时完成的匿名调查显示，参与者在5点Likert量表上报告了以下内容：主持人安排了分配的时间，以便我的声音被听到（67%强烈同意; 33%同意）。相关专家出席了工作室（78%的人非常同意; 22%的人同意）。我对工作室会议感到满意（78%强烈同意; 22%同意）。工作室的过程值得我花时间（89%强烈同意; 11%同意）。社区专家提供的反馈将改善研究项目（68%的人非常同意; 44%的人同意）。参与者还被问及他们认为自己对研究项目的贡献。其中最常见的主题是：增加研究人员对社区的了解，增加研究人员对社区的敏感性，提供有关项目可行性的反馈，提供招募研究参与者的想法，提供如何使用项目结果使社区受益的想法，并提供如何向社区宣传项目的想法。所有参与者都表示他们将再次参加工作室。影响的讨论/意义：研究生命周期的所有阶段的研究可以通过与社区专家的磋商得到加强。这些利益相关者可以为需求评估提供信息，为研究设计提供投入，提供关于支持和阻碍研究参与的关键信息，审查研究工具的可读性和文化适当性，提供招聘和教育材料的反馈，并为研究结果的传播提供信息。当这些磋商包括尽可能广泛的利益攸关方的声音时，它们为研究人员提供了最大的好处。我们已经证明，将生活在农村和边境地区的利益相关者纳入工作室咨询是可行的。我们还制定了成功的方法，与利益攸关方进行工作室协商，这些利益攸关方是面临健康差距的社区成员，并且讲多种语言。在社区参与工作室的这种扩大的代表性加强了研究。
OBJECTIVES/SPECIFIC AIMS: Our goals in developing adaptations to the Community Engagement Studio model have been to: (1) enable investigators to consult with as broad a range of community “experts” (stakeholders) as possible, (2) make Studio participation feasible for stakeholders from rural and frontier areas, (3) create a safe environment for stakeholders from communities facing health disparities, who have had low participation in research, and (4) enable stakeholders to speak in the language in which they are most comfortable. METHODS/STUDY POPULATION: We have used several strategies to enable investigators to gain input from stakeholders in rural and frontier areas. If the research focuses on rural populations, we hold the Studio at a central location, usually at a restaurant in a private room, if this is available. If the investigator wants to hear from both rural and urban residents, we use videoconferencing via Skype or FaceTime when individuals have enough bandwidth to support it and/or feel comfortable using this technology. For those who have dial-up or no internet access, we provide a conference call line Trusting relationships are essential to creating a safe space in which stakeholders from communities facing health disparities can provide consultations to researchers. When an investigator wishes to consult with stakeholders from one racial/ethnic community, we contract with a leader or trusted member of that community to recruit appropriate stakeholders. The Studio is co-facilitated by a CCET staff member and a community leader in the community’s preferred language, with the leader translating for the CCET staff member. For Studios that involve stakeholders from multiple communities and that are conducted in English, we provide translators, if appropriate. Stakeholders using translation may be present in the room with other Studio participants or may be on the phone. RESULTS/ANTICIPATED RESULTS: Of the 35 Studios we have held, five have been held in rural locations and another five have included one or more rural/frontier stakeholders participating via phone or videoconferencing. Six Studios have been co-facilitated with community leaders and four others have included translators. Almost all Studios we have held in English have included individuals representing diverse communities. Anonymous surveys completed at the end of Studios show that participants report the following on 5-point Likert scales:. The facilitator managed the allotted time so that my voice was heard (67% strongly agree; 33% agree). The relevant experts were present at the Studio (78% strongly agree; 22% agree). I was satisfied with the Studio session (78% strongly agree; 22% agree). The Studio process was worth my time (89% strongly agree; 11% agree). The feedback provided by the community experts will improve the research project (68% strongly agree; 44% agree). Participants were also asked what they felt was their contribution to the research project. Among the most common themes were: increased researcher’s understanding of the community, increased researcher’s sensitivity to the community, provided feedback on the feasibility of the project, provided ideas on recruiting research participants, provided ideas for how to use the project results to benefit the community, and provided ideas on how to inform the community about the project. All participants said that they would participate in a Studio again. DISCUSSION/SIGNIFICANCE OF IMPACT: Studies at all stages in the research life cycle can be strengthened through consultations with community experts. These stakeholders can inform needs assessments, provide input on study design, supply critical information on supports and barriers to research participation, review study instruments for readability and cultural appropriateness, provide feedback on recruitment and educational materials, and inform dissemination of research results, among others. These consultations provide the most benefit to researchers when they include the voices of as broad a range of stakeholders as possible. We have shown that it is feasible to include stakeholders who live in rural and frontier areas in Studio consultations. We also have developed successful methods for holding Studio consultations with stakeholders who are members of communities facing health disparities and who speak multiple languages. This expanded representation in Community Engagement Studios strengthens research studies.