Survey of behaviour problems in children with neuromuscular diseases
Survey of behaviour problems in children with neuromuscular diseases
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DOI：
10.1016/j.ejpn.2006.04.004
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发表时间：
2006-05-01
影响因子：
3.1
通讯作者：
McConachie, Helen
中科院分区：
文献类型：
--
作者：
Darke, Joanne;Bushby, Kate;McConachie, Helen
之前对临床样本的研究表明，患有神经肌肉疾病的儿童可能会受到心理健康问题的影响。这项研究的目的是在患有神经肌肉疾病的总人群中建立照顾者报告的童年中期社交、沟通和行为问题的患病率。从111个目标人口中，对居住在英国北部地区的82名5-13岁患有神经肌肉疾病的儿童的照顾者进行了关于服务利用和需求的采访，66人完成了长处和困难问卷、社交问题问卷和儿童沟通检查表。五分之二的儿童在至少一份问卷上的得分超过了临床分界点。这些结果明显高于报道的国家和正常发展中的样本。82人中有9人被诊断为自闭症谱系障碍。有问题儿童的照顾者报告的未得到满足的需求水平明显更高。行为、社交和沟通问题在患有神经肌肉疾病的儿童中很常见，区域神经肌肉诊所应该考虑心理健康筛查和评估。(C)2006年欧洲儿科神经病学学会。爱思唯尔有限公司出版。保留所有权利。
Previous research on clinic samples has suggested that children with neuromuscular diseases may be affected by mental health problems. The aim of this study was to establish the carer-reported prevalence of social, communication, and behavioural problems in middle childhood in a total population with neuromuscular diseases.From a target population of 111, 82 carers of children aged 5-13 years with a diagnosed neuromuscular disease living in the Northern Region of UK were interviewed about service utilisation and needs, and 66 completed the Strengths and Difficulties Questionnaire, Social Communication Questionnaire and Children's Communication Checklist.Two-fifths of children scored above the clinical cut-off on at least one questionnaire. These results were significantly higher than are reported for national and normally developing samples. Nine out of 82 had a diagnosis of autism spectrum disorder. Carers of children with problems reported significantly higher levels of unmet need.Behaviour, social and communication problems are common in children with neuromuscular diseases and Regional Neuromuscular Clinics should consider mental health screening and assessment. (C) 2006 European Paediatric Neurology Society. Published by Elsevier Ltd. All rights reserved.