Perspectives on Precision Medicine in a Tribally Managed Primary Care Setting.
Perspectives on Precision Medicine in a Tribally Managed Primary Care Setting.
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DOI：
10.1080/23294515.2020.1817172
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发表时间：
2020-10
影响因子：
--
通讯作者：
Spicer P
中科院分区：
文献类型：
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作者：
Beans JA;Woodbury RB;Wark KA;Hiratsuka VY;Spicer P
精准医学的研究和临床应用正在快速发展。为了确保项目管理中所有人群的道德包容，深入了解不同社区对项目管理研究和项目管理实施的看法是必要的。进行了半结构化访谈，以探索部落管理的医疗保健组织中项目管理的观点。采用主题分析法对46个访谈的数据进行分析。与会者将诊断效率的提高、可预防疾病的风险识别以及针对特定人群的生物医学研究的进步描述为PM的主要好处。与数据共享相关的隐私风险、对PM的过度承诺以及管理患者对PM的期望有关的担忧。利益攸关方鼓励在实施项目管理之前开展健康教育活动，利用一系列沟通战略。在本研究中描述的观点可能有助于在本医疗系统和其他医疗系统中实施PM之前进行考虑，特别是那些服务于不同人群的医疗系统。
Precision medicine (PM) research and clinical application is moving forward at a rapid pace. To ensure ethical inclusion of all populations in PM, in-depth understanding of diverse communities’ views of PM research and PM implementation is necessary. Semi-structured interviews were conducted to explore perspectives on PM in a tribally managed healthcare organization. Thematic analysis was used to analyze data from 46 interviews. Participants described gains in diagnostic efficiency, risk identification for preventable disease, and the advancement of population-specific biomedical research as key benefits of PM. Concerns expressed related to privacy risks associated with data-sharing, overpromising on PM, and managing patient expectations related to PM. Stakeholders encouraged PM implementation to be preceded by health education activities that leverage a range of communication strategies. Perspectives described in this study may aid in and should be considered prior to implementation of PM in this and other healthcare systems, especially those serving diverse populations.