Development and evaluation of a palliative care curriculum for cystic fibrosis healthcare providers
Development and evaluation of a palliative care curriculum for cystic fibrosis healthcare providers
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DOI：
10.1016/j.jcf.2015.03.005
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发表时间：
2016-01-01
影响因子：
5.2
通讯作者：
Moskowitz, Samuel M.
中科院分区：
文献类型：
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作者：
Linnemann, Rachel W.;O'Malley, Patricia J.;Moskowitz, Samuel M.
背景资料：初级姑息治疗是指所有医疗保健提供者都可以用来改善疾病任何阶段患者生活质量的基本技能。这些核心技能的培训通常不提供给护理囊性纤维化（CF）患者的临床医生。本研究的目的是评估舒适度的变化与核心技能护理团队成员之间的CF-特定的姑息治疗培训后，专注于管理繁重的症状和困难的conversation.Methods：进行定性需求评估，以告知开发的18小时的课程，专门针对慢性和复杂性的CF护理。一项包含32个问题的课程前和课程后调查使用5分制李克特量表评估了CF提供者对5个领域中目标姑息治疗技能的舒适度（1 =非常不舒服，3 =中性，5 =非常舒适）。在课程参与者（n = 16）中，平均总体舒适度评分从3（中性）增加到3.9（舒适）（p < 0.001）。平均舒适度显着增加（范围0.8至1.4），在每个技能域：使用支持性护理资源，疼痛管理，非疼痛症状管理，沟通和心理社会skills.Conclusions：CF特定的姑息治疗培训深受与会者和显着提高自我评估的舒适度与核心技能。(C)2015年欧洲囊性纤维化协会。Elsevier B. V.出版，保留所有权利。
Background: Primary palliative care refers to basic skills that all healthcare providers can employ to improve quality of life for patients at any stage of disease. Training in these core skills is not commonly provided to clinicians caring for cystic fibrosis (CF) patients. The objective of this study was to assess change in comfort with core skills among care team members after participation in CF-specific palliative care training focused on management of burdensome symptoms and difficult conversations.Methods: A qualitative needs assessment was performed to inform the development of an 18-hour curriculum tailored to the chronicity and complexity of CF care. A 32-question pre- and post-course survey assessed CF provider comfort with the targeted palliative care skills in 5 domains using a 5-point Likert scale (1 = very uncomfortable, 3 = neutral, 5 = very comfortable).Results: Among course participants (n = 16), mean overall comfort score increased by 0.9, from 3 (neutral) to 3.9 (comfortable) (p < 0.001). Mean comfort level increased significantly (range 0.8 to 1.4) in each skill domain: use of supportive care resources, pain management, non-pain symptom management, communication, and psychosocial skills.Conclusions: CF-specific palliative care training was well received by participants and significantly improved self-assessed comfort with core skills. (C) 2015 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.