Development and usability testing of a web-based self-management intervention for oral cancer survivors and their family caregivers.
Development and usability testing of a web-based self-management intervention for oral cancer survivors and their family caregivers.
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DOI：
10.1111/ecc.12396
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发表时间：
2016-09
影响因子：
2.1
通讯作者：
Genden E
中科院分区：
文献类型：
--
作者：
Badr H;Lipnick D;Diefenbach MA;Posner M;Kotz T;Miles B;Genden E
口腔癌 (OC) 幸存者会经历使人衰弱的副作用，影响他们及其护理人员的生活质量 (QOL)。本研究旨在开发和评估基于网络的二元干预措施，以改善幸存者自我管理和幸存者/护理人员的生活质量。对 13 名 OC 幸存者和 12 名护理人员进行了定性需求评估（半结构化访谈），以了解信息和支持需求以及对网站功能和工具的偏好。使用扎根理论分析的结果表明，OC 幸存者和护理人员：1）想要并且需要有关管理副作用的实用建议； 2) 希望向其他幸存者/护理人员寻求信息和支持； 3) 对网站功能有重叠且独特的需求和偏好。可用性测试（N=6 名幸存者；5 名护理人员）发现了网站的直观性、导航和设计方面的问题，这些问题随后得到了解决。用户对网站的吸引力、可控性、效率、直观性和易学性等维度给予了好评，可用性总分为80/100。总体而言，这项研究表明，OC 幸存者和护理人员有兴趣使用在线程序来提高生活质量，并且根据该人作为幸存者或护理人员的角色提供定制的网站内容和功能对于该人群非常重要。
Oral cancer (OC) survivors experience debilitating side effects that affect their quality of life (QOL) and that of their caregivers. This study aimed to develop and evaluate a dyadic, web-based intervention to improve survivor self-management and survivor/caregiver QOL. A qualitative needs assessment (semi-structured interviews) with 13 OC survivors and 12 caregivers was conducted to discern information and support needs as well as preferences regarding website features and tools. Results using Grounded Theory analysis showed that OC survivors and caregivers: 1) want and need practical advice about managing side effects; 2) want to reach out to other survivors/caregivers for information and support; and, 3) have both overlapping and unique needs and preferences regarding website features. Usability testing (N=6 survivors; 5 caregivers) uncovered problems with the intuitiveness, navigation, and design of the website that were subsequently addressed. Users rated the website favorably on the dimensions of attractiveness, controllability, efficiency, intuitiveness, and learnability, and gave it a total usability score of 80/100. Overall, this study demonstrates that OC survivors and caregivers are interested in using an online program to improve QOL, and that providing tailored website content and features based on the person’s role as survivor or caregiver is important in this population.