Stories from people living with frailty
Stories from people living with frailty
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DOI：
10.1017/s0144686x19000825
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发表时间：
2020-12-01
期刊：
影响因子：
2.5
通讯作者：
McCormack, Brendan
中科院分区：
文献类型：
--
作者：
Lloyd, Anna;Haraldsdottir, Erna;McCormack, Brendan
我们描述了一组最初居住在社区的虚弱老年人及其非正式和正式照顾者的定性纵向访谈研究的结果。我们使用叙事的方法来探索叙事对于生活在脆弱中的人可能起到的作用。与那些患有慢性病的人的经历相比，这方面的探索较少。这些虚弱的老年人讲述了他们的经历，揭示了三种不同的形状或类型。这些要么是稳定的、失衡的，要么是不堪重负的，与这个人如何设法适应不断增加的挑战和损失，并将他们的自我意识重新整合到一个连贯的叙事中有关。每一个案例都用一个单独的案例来说明。脆弱被描述为既是传记上预期的，又可能是传记上的破坏性的，因为老年人可能难以在没有明确的单一原因的情况下理解他们的情况。研究结果涉及慢性病患者的传记中断和重建，以及围绕“成功老龄化”的修辞。最后，我们提请注意复杂的个人和社会因素，这些因素有助于在以后的生活中与脆弱生活在一起。
We describe the findings of a qualitative longitudinal interview study of a group of initially community-dwelling frail older people, and their informal and formal carers. We used a narrative approach to explore the role that narrative may have for people living with frailty. This has been less explored comparative to the experiences of those living with chronic illness. The frail older people told stories of their experiences that revealed three distinct shapes or typologies. These were either stable, unbalancing or overwhelmed, and related to how the person managed to adapt to increasing challenges and losses, and to reintegrate their sense of self into a cohesive narrative. Each is illustrated by an individual case story. Frailty is described as both biographically anticipated yet potentially biographically disruptive as older people may struggle to make sense of their circumstances without a clear single causative factor. Findings are discussed in relation to biographical disruption and reconstruction in chronic illness and the rhetoric around 'successful ageing'. We conclude by drawing attention to the complex individual and social factors that contribute to the experience of living with frailty in later life.