History and general overview
History and general overview
复制标题
历史和总体概述
DOI：
--
复制
发表时间：
1986
期刊：
影响因子：
--
通讯作者：
J. Reynolds
中科院分区：
文献类型：
--
作者：
A. Rett;J. M. Opitz;J. Reynolds
当前讨论中的综合症可能比我们所知的历史要长得多。20年前的第一次描述只注意到受影响患者的行为和神经，心理和社会症状的相似性。B Hagberg在美国发表的文章引起了全世界对该综合征的关注。由于儿童在生命的第一年中的发育进展并不显著，父母发现特别难以理解和科普随后的运动、语言和智力发育的停滞。目前缺乏有效的治疗方法，并不能免除我们尽一切努力保护现有能力和功能的任务。经验告诉我们，受影响的儿童的凝视，似乎非常强烈，并伴随着记忆减退或记忆缺失，是任何社会接触可能性的焦点。父母经常报告他们与孩子的视觉接触，这应该促使人们更加努力地解决这一现象。
: The syndrome under discussion probably has a much longer history than we know. The first description of 20 years ago noted only the similarities of behavior and neurological, psychological, and social symptoms of the affected patients. The publication by B Hagberg in the US drew world-wide attention to the syndrome. Since the development of the child proceeds unremarkably during the first year of life parents find it particularly difficult to understand and to cope with the subsequent arrest of motor, language and intellectual development. The present lack of a causally effective treatment does not relieve us from the task to do all we can to preserve existing capabilities and functions. Experience tells us that the gaze of the affected children, which seems very intense and is accompanied by hypomimia or amimia, is the focus of any possibility for social contact. Parents often report on their visual contact with the child which should spur greater efforts to work on that phenomenon.