Consumer awareness and attitudes about insurance discrimination post enactment of the Genetic Information Nondiscrimination Act
Consumer awareness and attitudes about insurance discrimination post enactment of the Genetic Information Nondiscrimination Act
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DOI：
10.1007/s10689-012-9564-0
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发表时间：
2012-12-01
期刊：
影响因子：
2.2
通讯作者：
Senter, Leigha
中科院分区：
文献类型：
--
作者：
Allain, Dawn C.;Friedman, Sue;Senter, Leigha
研究与遗传性乳腺癌和卵巢癌综合征倡导组织接触的个人对遗传信息非歧视法的认识和态度。这是一项描述性研究，受试者（n = 1，699）通过电子邮件和广告被邀请完成2009年8月至2010年12月的在线问卷。使用交叉表和卡方检验比较相关亚组的缓解分布。大多数受访者（69.2%）接受了基因检测（n = 1,156），30.2%没有。在那些没有接受基因检测的人中，拒绝检测的最常见原因是成本（28.8%），其次是担心保险歧视（19.5%）。超过一半（60.5%）的人在最初考虑基因检测时担心医疗保险歧视，28.6%的人担心就业歧视。稍微多一点的人担心健康保险歧视，如果他们没有事先了解GINA。虽然“成本”是最常见的不参加考试的原因，但“担心保险歧视”是第二个最常见的原因。消费者对GINA的了解仍然有限，公众教育可能有助于减少恐惧。
To examine the awareness and attitudes about the Genetic Information Nondiscrimination Act in individuals who made contact with a Hereditary Breast and Ovarian Cancer Syndrome advocacy group. This is a descriptive study of individuals (n = 1,699) who were invited via email and advertisements to complete an online questionnaire available from August 2009 through December 2010. Response distributions of relevant subgroups were compared using cross tabulation and Chi-squared tests were used. The majority of respondents (69.2 %) had undergone genetic testing (n = 1,156) and 30.2 % had not. Of those who did not undergo genetic testing, the most common reason given for declining testing was cost (28.8 %), followed by concerns about insurance discrimination (19.5 %). More than half (60.5 %) were worried about health insurance discrimination when they first considered genetic testing and 28.6 % were worried about employment discrimination. Slightly more individuals were worried about health insurance discrimination if they had no prior knowledge of GINA. While "cost" was cited most frequently as the reason not to test, "fear of insurance discrimination" was the second most common reason. Knowledge of GINA among consumers is still limited and public education may help promote reduction in fear.