Understanding How Software Can Support the Needs of Family Caregivers for Patients with Severe Conditions
Understanding How Software Can Support the Needs of Family Caregivers for Patients with Severe Conditions
复制标题
了解软件如何满足重症患者家庭护理人员的需求
DOI：
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发表时间：
2017
期刊：
影响因子：
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通讯作者：
Giampaolo Armellin
中科院分区：
文献类型：
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作者：
A. Fiore;Francesco Ceschel;F. Fiore;Marcos Báez;F. Casati;Giampaolo Armellin
在本文中，我们报告了一个广泛的分析，我们在两种情况下，医生和病人之间的护理关系是由病人的亲属调解：儿科姑息治疗（PPC）和养老院（NH）。当病人是儿童或生命垂危的高龄成年人时，护理的提供通常由一名家庭照顾者作为保健服务的主要联络人。PPC和NH的特点是情感复杂性，因为无法治愈的疾病使家庭照顾者承受沉重的照顾负担和人类的痛苦。在本文中，我们以一种新颖的视角讨论了我们的发现，重点是：处理此类环境所产生的信息、协调和社会挑战，现有的技术，因为它是今天应付它们，以及我们，作为软件研究人员，可以做些什么来开发正确的解决方案。
In this paper, we report an extensive analysis that we performed in two scenarios where the care relation between doctor and patients are mediated by the relatives of the patients: Pediatric Palliative Care (PPC) and Nursing Homes (NH). When the patients are children or very old adults in the end of life, the provision of care often involve a family caregiver as the main point of contact for the health service. PPC and NH are characterized by emotional complexity, since incurable diseases expose the family caregivers to heavy careload and human distress. In this paper, we discuss our findings with a novel perspective, focusing on: information, coordination and social challenges that arise by dealing with such contexts, the existing technology as it is appropriated today to cope with them, and what we, as software researchers, can do to develop the right solutions.