Using an e-health intervention to promote the health of cancer survivors with preexisting disabling conditions.
Using an e-health intervention to promote the health of cancer survivors with preexisting disabling conditions.
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使用电子健康干预措施来促进患有先前存在残疾状况的癌症幸存者的健康。
DOI：
10.1097/nxn.0b013e3182771895
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发表时间：
2013
期刊：
影响因子：
--
通讯作者：
Kang,SookJung
中科院分区：
文献类型：
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作者：
Becker,Heather;Mackert,Mike;Kang,SookJung
虽然有关于癌症患者和残疾人使用电子保健的研究，但没有任何干预措施侧重于癌症幸存者，他们在患癌症之前就有残疾。因此，我们开发并试点了在线健康促进计划LiveAble的可行性。基于一个理论驱动的健康促进计划，以前被证明是有效的人与各种慢性疾病，LiveAble被改编为一个电子健康干预癌症幸存者与预先存在的残疾。11位癌症幸存者对LiveAble进行了评论并提供了反馈。参与者的平均年龄为54岁。大多数人在患癌症之前就有神经肌肉损伤;大约一半是乳腺癌幸存者。健康实践自我效能量表的平均得分增加。参与者认为LiveAble有用，有吸引力，与残疾人相关。他们的反馈还提出了需要改变的领域，比如一个更容易导航和更个性化的系统。只有51%的参与者同意LiveAble激励他们采取行动改善健康。为了将信息转化为行动，参与者可能需要额外的帮助和鼓励。虽然初步结果是有希望的，未来的努力应该确定LiveAble与更大和更多样化的幸存者群体的疗效。
Although there has been research on the use of e-health for cancer patients and those living with disabilities, no interventions focus on cancer survivors who had a disabling condition prior to their cancer. Therefore, we developed and piloted the feasibility of the online health-promotion program LiveAble. Based on a theoretically driven health-promotion program previously shown to be effective among people with various chronic conditions, LiveAble was adapted to be an e-heath intervention for cancer survivors with preexisting disabilities. Eleven cancer survivors reviewed LiveAble and provided feedback. The participants’ average age was 54 years. Most had neuromuscular impairments prior to their cancer; about half were breast cancer survivors. Average scores on the Self-efficacy for Health Practices Scale increased. Participants rated LiveAble useful, attractively presented, and relevant to people with disabilities. Their feedback also suggested areas for change, such as a system that was easier to navigate and more individualized. Only 51% of these participants agreed that LiveAble motivated them to take action to improve their health. To turn information into action, participants may need additional assistance and encouragement. Although preliminary results were promising, future efforts should determine the efficacy of LiveAble with larger and more diverse groups of survivors.