The "empty choice': A sociological examination of choosing medical research participation in resource-limited Sub-Saharan Africa
The "empty choice': A sociological examination of choosing medical research participation in resource-limited Sub-Saharan Africa
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DOI：
10.1177/0011392115590093
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发表时间：
2015-09-01
影响因子：
2
通讯作者：
Kingori, Patricia
中科院分区：
文献类型：
--
作者：
Kingori, Patricia
本文探讨了撒哈拉以南非洲不同背景下的一线研究人员对生物医学研究中选择概念的看法。它认为，目前强调个人的选择，在生物医学研究的进行，忽视了重要的结构和环境因素，在资源有限的设置。这些因素严重限制了个人的选择，往往使生物医学研究成为世界上最贫穷的人获得医疗保健的最可行途径。从一线研究人员的立场来看，当地的背景因素和结构性问题狭隘地限制了许多潜在参与者被要求选择的参数，以至于个人实际上面临着一个空洞的选择。本文借鉴了民族志和访谈数据，并通过图形说明技术获得的见解。它表明，对于一线的研究人员，宏观层面的结构性因素及其对日常现实的影响塑造了在实践中参与生物医学研究的选择意味着什么。
This article explores the views of frontline research staff in different Sub-Saharan African contexts on the notion of choice in biomedical research. It argues that the current emphasis on individual choice, in the conduct of biomedical research, ignores significant structural and contextual factors in resource-limited settings. These factors severely constrain individual options and often make biomedical research enrolment the most amenable route to healthcare for the world's poorest. From the position of frontline research staff, local contextual factors and structural issues narrowly frame the parameters within which many prospective participants are asked to choose, to such an extent that individuals are effectively presented with an empty choice'. The article draws on ethnographic and interview data and insights gained through graphic elucidation techniques. It demonstrates that for frontline research staff, macro-level structural factors and their bearing on everyday realities shape what choice in biomedical research participation means in practice.