THE POPULATION-BASED CANCER REGISTRY AS A RESOURCE FOR RESEARCH AND PRACTICAL HEALTHCARE
THE POPULATION-BASED CANCER REGISTRY AS A RESOURCE FOR RESEARCH AND PRACTICAL HEALTHCARE
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基于人群的癌症登记作为研究和实际医疗保健的资源
DOI：
10.33396/1728-0869-2017-5-54-62
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发表时间：
2017
期刊：
影响因子：
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通讯作者：
A. Grjibovski
中科院分区：
文献类型：
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作者：
M. Valkov;A. Karpunov;M. Coleman;C. Allemani;A. Y. Pankratieva;E. Potekhina;L. Valkova;A. Grjibovski
基于人群的癌症登记收集了一个标准化的数据集，该数据集涉及所有诊断为恶性肿瘤的患者，这些患者居住在登记所涵盖的定义区域内，从最初诊断到调查和治疗，直到患者最终死亡。这使得能够估计癌症负担和监测一段时间内的趋势，作为癌症控制政策的证据基础。全球有300多个基于人群的癌症登记处，覆盖了全球约5%的人口，但发达国家的比例远高于发展中国家。遵守数据收集和质量控制的国际标准极为重要，因为这有助于在国内各地区和国际上对发病率、流行率和生存率进行可靠的比较。这些比较激发了癌症预防和临床实践的变化，以及癌症控制政策的组织和实施的进展。这类比较的例子有五大洲癌症发病率国际项目、Globocan和全球癌症存活率监测CONCORD方案。在这篇文章中，我们描述了阿尔汉格尔斯克地区癌症登记处的数据的实际应用的组织和经验，无论是在俄罗斯和国际合作。
Population-based cancer registries collect a standardized dataset about all patients diagnosed with a malignancy who live in the defined territory covered by the registry, from initial diagnosis through investigation and treatment, to the eventual death of the patient. This enables estimation of the cancer burden and surveillance of trends over time, as the evidence base for cancer control policies. There are more than 300 population-based cancer registries around the world, covering about 5% of the world's population, but the proportion is much higher in developed countries than in developing countries. Adherence to international standards of data collection and quality control is extremely important, because it enables robust comparisons of incidence, prevalence and survival, both between the regions of the country and internationally. These comparisons inspire changes in cancer prevention, and clinical practice, and progress in the organisation and delivery of policies for cancer control. The examples of such comparisons are international projects Cancer Incidence in Five Continents, Globocan and the CONCORD programme for the global surveillance of cancer survival. In this article, we describe the organisation and experience of practical application of data from the Arkhangelsk regional cancer registry, both within Russia and in international collaborations.