Siblings' experiences with childhood cancer - A different way of being in the family
Siblings' experiences with childhood cancer - A different way of being in the family
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DOI：
10.1097/00002820-200609000-00010
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发表时间：
2006-09-01
期刊：
影响因子：
2.6
通讯作者：
Woodgate, Roberta Lynn
中科院分区：
文献类型：
--
作者：
Woodgate, Roberta Lynn
儿童癌症及其治疗带来了许多影响整个家庭的挑战。对于癌症儿童的兄弟姐妹来说，这些挑战可能特别紧张，因为他们的生活经常发生巨大的变化。虽然关于兄弟姐妹如何经历儿童癌症的知识体系越来越健全，但仍有很多东西需要学习。作为一项更大的定性研究的一部分，该研究旨在从父母、患病儿童和兄弟姐妹的角度详细描述儿童癌症经历及其症状轨迹，本研究旨在描述参与研究的30名兄弟姐妹的具体发现。Sillay参与了个人访谈、焦点小组访谈和参与者观察。不断比较的数据分析方法产生了“生存方式”的理论范畴，它指的是癌症对癌症儿童及其家庭生活的不同影响。对于兄弟姐妹来说，癌症是他们在家庭中的一种不同的生活方式，涉及兄弟姐妹在家庭中失去家庭生活方式和失去自我。与不同的家庭生活方式相关的三个主题被确定为：承诺让我的家人在一起，在场，以及持久的悲伤。这些发现强化了需要做更多的工作来帮助健康的兄弟姐妹度过儿童癌症。
Childhood cancer and its treatment result in many challenges that impact the entire family. For siblings of children with cancer, the challenges can be particularly stressful as they often undergo tremendous change in their lives. Although there is a sound and growing body of knowledge on how siblings experience childhood cancer, there is still much to be learned. Part of a larger qualitative study aimed at detailing childhood cancer experience and its symptom trajectory from the perspective of parents, ill children, and siblings, this study aims to describe findings specific to 30 siblings who participated in the study. Siblings took part in individual interviews, focus group interviews, and participant observation. The constant comparative method of data analysis yielded the theoretical category of "ways of being in the world, which referred to the different ways that cancer impacted on the lives of children with cancer and their families. For the siblings, cancer was experienced as a different way of being within their family and involved siblings undergoing a loss of a family way of life and a loss of self within the family. Three themes related to a different way of being in the family were identified: committing to keeping my family together, being present, and enduring sadness. The findings reinforce that more needs to be done in helping healthy siblings through childhood cancer.