The Structure of Informal Social Networks of Persons with Profound Intellectual and Multiple Disabilities
The Structure of Informal Social Networks of Persons with Profound Intellectual and Multiple Disabilities
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DOI：
10.1111/jar.12134
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发表时间：
2015-05-01
影响因子：
2.4
通讯作者：
Vlaskamp, C.
中科院分区：
文献类型：
--
作者：
Kamstra, A.;van der Putten, A. A. J.;Vlaskamp, C.
背景残疾程度较轻的人能够表达自己的需求，并在社会交往中表现出主动性，但严重智力和多重残疾的人则依赖他人。本研究分析了PIMD患者的非正式网络结构，资料与方法收集了205例PIMD患者的非正式网络联系人的数量、类型和频率。79.4%的接触者是家庭，平均每年接触72.3人。与其他非正式接触者相比，父母有更多的接触。在2.2%的样本与同行的接触seeed.Conclusions PIMD的人的非正式网络主要包括家庭。问题是如何扩大非正式网络，专业人员在这一进程中应发挥何种作用。
Background Persons with less severe disabilities are able to express their needs and show initiatives in social contacts, persons with profound intellectual and multiple disabilities (PIMD), however, depend on others for this. This study analysed the structure of informal networks of persons with PIMD.Materials and Methods Data concerning the number, type and frequency of contacts were collected in 205 persons with PIMD.Results The mean number of contact persons was 5.1 (range: 0-26, SD: 4.2) per year. 79.4% of the contact persons are family, with an average of 72.3 contacts per year. Parents had significantly more contact compared to the other informal contact persons. In 2.2% of the sample contacts with peers were seen.Conclusions The informal networks of persons with PIMD consist mainly of family. The question arises how informal networks can be expanded and which role professionals have in this process.