Conceptualizing Inclusive Research with People with Intellectual Disability

Conceptualizing Inclusive Research with People with Intellectual Disability
复制标题

DOI:
10.1111/jar.12083
复制
发表时间:
2014-01-01
影响因子:
2.4
通讯作者:
Ramcharan, Paul
Ramcharan, Paul
中科院分区:
医学3区
文献类型:
--
作者:
Bigby, Christine;Frawley, Patsie;Ramcharan, Paul

文献摘要

被引文献

相似文献

BackgroundThe inclusion of people with intellectual disability in research is a common requirement of research funding. Little conceptual clarity is available to guide the conduct of inclusive research or judge its fidelity, there is minimal evidence of its impact, and questions remain about its feasibility and rigour.MethodA comprehensive review of the peer reviewed literature and key texts was undertaken to more clearly conceptualize inclusive research and identify the issues associated with ways of approaching it.FindingThree approaches to inclusive research were identified: advisory, leading and controlling, and collaborative group. Using the literature and the authors' own experience, each approach is illustrated and discussed.ConclusionsA clearer conceptual framework is developed to guide researchers and administrators as they consider inclusive research and its feasibility to particular research questions. A strong self-advocacy movement is identified as one of the conditions necessary for inclusive research to flourish.