An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency.
An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency.
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DOI：
10.1155/2010/692439
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发表时间：
2010
期刊：
影响因子：
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通讯作者：
Wisniewski AB
中科院分区：
文献类型：
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作者：
Schaeffer TL;Tryggestad JB;Mallappa A;Hanna AE;Krishnan S;Chernausek SD;Chalmers LJ;Reiner WG;Kropp BP;Wisniewski AB
2002年，劳森·威尔金斯儿科内分泌学会和欧洲儿科内分泌学学会联合发表了一份关于21-羟基酶缺乏症引起的经典先天性肾上腺增生症的协商一致声明。这一共识的建议之一是，中心应该保持多学科团队，为这些患者及其家人提供护理和支持。然而，在最初的协商一致声明中没有具体说明应如何实现这一点。在这里，我们解释并将2002年共识声明的建议转化为内科、外科和精神卫生方案。此外，我们还提供了初步证据，证明这种方案可以改善对患者和家属的护理和支持。
In 2002 a consensus statement pertaining to the management of classical congenital adrenal hyperplasia due to 21-hydroxylase deficiency was jointly produced by the Lawson Wilkins Pediatric Endocrine Society and the European Society of Pediatric Endocrinology. One of the recommendations of this consensus was that centers should maintain multidisciplinary teams for providing care and support to these patients and their families. However, the specifics for how this should be accomplished were not addressed in the original consensus statement. Here we interpret and translate the 2002 consensus statement recommendations into medical, surgical and mental health protocols. Additionally, we provide preliminary evidence that such protocols result in improved care and support for patients and families.