A socioecological framework for engaging substance-using pregnant persons in longitudinal research: Multi-stakeholder perspectives.
A socioecological framework for engaging substance-using pregnant persons in longitudinal research: Multi-stakeholder perspectives.
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DOI：
10.1016/j.ntt.2021.106997
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发表时间：
2021-09
影响因子：
2.9
通讯作者：
Zgierska AE
中科院分区：
文献类型：
--
作者：
Goldstein E;Nervik K;Hagen S;Hilliard F;Turnquist A;Bakhireva LN;McDonald R;Ossorio PN;Lo J;Zgierska AE
了解怀孕期间物质使用对胎儿发育和儿童健康的影响对于设计有效的方法减少产前物质暴露和改善儿童结局至关重要。关于产前物质暴露对发育影响的研究受到法律的、伦理和实践挑战的限制。本研究从多个利益攸关方的角度审查了使使用药物（重点是类阿片）的孕妇参与研究的方法。本研究征求了以下方面的专门知识：1）社区利益攸关方咨询小组，包括有物质/类阿片使用经历的人; 2）内容专家在线调查。定性分析通过社会生态透镜在个人、人际、组织、社区和政策层面审查了招募和留住使用药物的孕妇的促进因素和障碍。利益相关者（N=19）优先考虑耻辱、失去保密性、法律的后果和不稳定性（例如，无家可归和贫困）是阻止吸毒者报名参加研究的重要障碍。在70名调查受访者中，大多数自认为是研究人员（n=37），其次是临床医生（n=19）和“其他”（n=14）。调查受访者关注的是与参与者建立信任关系的保留策略，包括激励措施（例如，交通和儿童保育支持），参与者友好的研究设计，和团队相关因素，（例如，态度和做法）。利益相关者的投入和调查数据提供了关键的见解，加强了我们对促进者和参与研究的障碍的理解，以及克服使用药物的孕妇之间障碍的方法。可利用社会生态框架来确定和解决这些因素，以增加招募和长期留住高危人群。
Understanding the impact of substance use during pregnancy on fetal development and child health is essential for designing effective approaches for reducing prenatal substance exposures and improving child outcomes. Research on the developmental impacts of prenatal substance exposure has been limited by legal, ethical, and practical challenges. This study examined approaches to engage substance-using (with an emphasis on opioids) pregnant persons in research, from multi-stakeholder perspectives. The present study solicited the expertise of 1) an advisory group of community stakeholders, including people with lived experienced of substance/opioid use; and 2) an online survey with content experts. Qualitative analysis examined facilitators and barriers to recruiting and retaining substance-using pregnant persons through a socioecological lens at the individual, interpersonal, organizational, community, and policy levels. Stakeholders (N=19) prioritized stigma, loss of confidentiality, legal consequences, and instability (e.g., homelessness and poverty) as important barriers that prevent substance-using persons from enrolling in research studies. Of 70 survey respondents, most self-identified as researchers (n=37), followed by clinicians (n=19), and ‘others’ (n=14). Survey respondents focused on retention strategies that build trusting relationships with participants, including incentives (e.g., transportation and childcare support), participant-friendly study design, and team-related factors, (e.g., attitudes and practices). The stakeholder input and survey data offer key insights strengthening our understanding of facilitators and barriers to research participation, and ways to overcome barriers among substance-using pregnant persons. A socioecological framework can be used to identify and address these factors to increase recruitment and long-term retention of high-risk populations.
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影响因子：
3.2
作者：
Hsieh, HF;Shannon, SE
通讯作者：
Shannon, SE
DOI：
10.1111/j.1552-6909.2009.01004.x
发表时间：
2009-03-01
影响因子：
1.8
作者：
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影响因子：
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作者：
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通讯作者：
Randall, Duncan C.
影响因子：
3
作者：
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通讯作者：
Wenzel, S