Caregiver perspectives of pre-transplant evaluation in children.

Caregiver perspectives of pre-transplant evaluation in children.
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DOI:
10.1007/s00467-021-05354-8
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发表时间:
2022-08
期刊:
Pediatric nephrology (Berlin, Germany)
影响因子:
--
通讯作者:
Amaral S
Amaral S
中科院分区:
其他
文献类型:
--
作者:
Salmon EC;Barr LG;Hill DL;Shea JA;Amaral S

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移植前评估是由医疗保险和医疗补助服务中心强制要求的,但在实施过程中存在广泛的制度差异,并且对该过程的家庭经验不完全了解。目前的文献主要集中在成人移植受体。本质性研究透过访谈一家大型小儿移植中心之照护者,填补有关儿童移植前评估之家庭经验的知识空白。从护理人员那里听到的突出主题包括(1)移植前评估是压倒性的和情绪化的,(2)以前的经验和背景知识框架的评估经验,(3)团队之间的沟通挫折是常见的。这些发现与移植中心优化信息传递,最大限度地减少具体障碍和解决医疗系统问题的努力有关。图形摘要的更高分辨率版本可作为补充信息在线版本包含补充材料,可在10.1007/s 00467 -021-05354-8获得。
Pre-transplant evaluation is mandated by Centers for Medicare and Medicaid Services, but there is wide institutional variation in implementation, and the family experience of the process is incompletely understood. Current literature largely focuses on adult transplant recipients. This qualitative study begins to fill the knowledge gap about family experience of the pre-transplant evaluation for children through interviews with caregivers at a large pediatric transplant center. Prominent themes heard from caregivers include (1) the pre-transplant evaluation is overwhelming and emotional, (2) prior experiences and background knowledge frame the evaluation experience, and (3) frustration with communication among teams is common. These findings are relevant to efforts by transplant centers to optimize information delivery, minimize concrete barriers, and address healthcare systems issues. A higher resolution version of the Graphical abstract is available as Supplementary information The online version contains supplementary material available at 10.1007/s00467-021-05354-8.
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