Late referral to hospice and bereaved family member perception of quality of end-of-life care
Late referral to hospice and bereaved family member perception of quality of end-of-life care
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DOI：
10.1016/j.jpainsymman.2005.04.013
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发表时间：
2005-11-01
影响因子：
4.7
通讯作者：
Stuart, B
中科院分区：
文献类型：
--
作者：
Schockett, ER;Teno, JM;Stuart, B
临终关怀服务的家庭评估被用来记录丧亲家庭成员的看法，他们的亲人是否被转介到临终关怀太晚，并检查该看法和临终关怀质量的关联。一项对两个非营利临终关怀机构的死者家属进行的死亡率跟踪调查发现，13.7%的死者在临终关怀服务为时已晚的时候被转诊。太晚转介的人的家庭成员对临终关怀服务的满意度较低，对死亡时期望的信息的未满足需求率较高，参与患者在家护理的信心较低，对护理协调的关注更多，总体满意度较低。家庭报告医生作为一个重要的障碍，早期临终关怀转介近一公顷的情况。这些结果表明，需要改善短期停留临终关怀患者/家庭的服务，并为医生，以帮助促进早期临终关怀入院。
The Family Evaluation of Hospice Services was used to document bereaved family members' Perceptions of whether their loved ones were referred too late to hospice and to examine the association of that perception and quality of end-of-life care. A mortality follow-back survey of bereaved family members from two not-for-profit hospices found that 13.7% of decedents were referred at a time too late for hospice services. Family members of persons referred too late reported lower satisfaction with hospice services, a higher rate of unmet needs for information about what to expect at time of death, lower confidence in participating in patient care at home, more concerns with coordination of care, and lower overall satisfaction. Families reported physicians as an important barrier to earlier hospice referral in nearly one-ha of cases. These results indicate a need for improved services for shorter-stay hospice patients/families and for physicians to help facilitate earlier hospice admission.