Chronic respiratory diseases strongly influence major life-changing decisions
Chronic respiratory diseases strongly influence major life-changing decisions
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慢性呼吸道疾病强烈影响重大的改变生活的决定
DOI：
10.1136/thx.2009.127159m
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发表时间：
2009
期刊：
影响因子：
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通讯作者：
C. Bolton
中科院分区：
文献类型：
--
作者：
Z. U. Bhatti;A. Finlay;S. Salek;I. Ketchell;C. Bolton
主要改变生活的决定（MLCD）受到以下因素的影响：
慢性皮肤病，1，但其他慢性疾病的影响
例如呼吸道疾病的研究较少。我们研究了
囊性纤维化与慢性阻塞性肺疾病
MLCD上的疾病（COPD）。
方法在门诊张贴或发放调查包
CF（n=100）或COPD成人患者的预约
（n=100）超过1年。病人们被要求写下
他们的长期疾病对他们的影响
MLCD。定性软件Nvivo 8用于详细数据
分析.不同的改变生活的决定被分为核心
决策
结果在200份调查表中，110份（55%）被退回（CF=61，
COPD=49）。其中，91例患者（58%为男性，平均年龄：
CF=27岁（范围18-53），COPD=65岁（范围53-84））
报告了他们的慢性病对MLCD的影响。81
患者（CF=50，COPD=31）报告，
至少1例MLCD（范围1-9），10例患者（CF=3，COPD=7）
报告无影响，17例患者（CF=8，COPD=9）拒绝
参与研究，2例患者死亡（COPD）。受CF影响的MLCD
COPD的危险因素依次为工作（n=39）、有子女（n=36）、职业
（n=31），提前退休（n=32），教育（n=24），关系
（n=19），移居国外（n=15），职业改变（n=10），
分居（n=9）、搬家（n=9）、结婚（n=6）、买房（n=4）和搬家（n=4）。
与假期（n=21）和生活方式改变（n=4）相关的决定
也被病人认为是改变生活的。最普遍的
CF和COPD病情的影响因素是
表1所示
结论这项研究表明呼吸系统疾病
如CF和COPD影响MLCD，从而影响患者的
随着时间的推移而显著变化。适当和及时的咨询，
支持可以帮助患者更好地科普长期疾病。
同时，临床医生的更多理解可能会提高
健康成果。在早期阶段提供有针对性的帮助可能会改善
患者未来的健康和生活。
Introduction Major life-changing decisions (MLCD) are influenced by
chronic skin conditions,1 but the effect of other chronic conditions
such as respiratory disease has been less explored. We studied the
influence of cystic fibrosis (CF) and chronic obstructive pulmonary
disease (COPD) on MLCD.
Methods Survey packs were posted or given at outpatient
appointments to adult patients who had CF (n=100) or COPD
(n=100) for more than 1 year. Patients were asked to write down
any ways in which their long-term disease had influenced their
MLCD. Qualitative software Nvivo 8 was used for detailed data
analysis. Different life-changing decisions were grouped into core
decisions.
Results Of the 200, 110 (55%) survey forms were returned (CF=61,
COPD=49). Of these, 91 patients (58% male, mean age:
CF=27 years (range 18–53), COPD=65 years (range 53–84))
reported the impact of their chronic condition on MLCD. 81
patients (CF=50, COPD=31) reported there was an influence on
at least 1 MLCD (range 1–9), 10 patients (CF=3, COPD=7)
reported no influence, 17 patients (CF=8, COPD=9) declined to
take part and 2 patients had died (COPD). MLCD affected by CF
and COPD were job (n=39), having children (n=36), career
(n=31), early retirement (n=32), education (n=24), relationships
(n=19), moving abroad (n=15), change of profession (n=10),
separation (n=9), moving to another house (n=9), marriage (n=6), buying a house (n=4) and moving to another city (n=4).
Decisions related to holidays (n=21) and life style change (n=4)
were also regarded by patients as life changing. The most prevalent
influential factors of the condition for both CF and COPD are
shown in table 1.
Conclusions This study demonstrates that respiratory conditions
such as CF and COPD influence MLCD which impact on patients’
lives significantly over time. Appropriate and timely advice and
support may help patients to cope better with long-term illnesses.
In parallel, greater understanding by clinicians might enhance
health outcomes. Targeted help at an early stage may improve
patients’ future health and lives.