Knowledge of congenital heart disease of mothers: presentation of a standardized questionnaire and first results.
Knowledge of congenital heart disease of mothers: presentation of a standardized questionnaire and first results.
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母亲先天性心脏病的知识：标准化问卷的呈现和初步结果
DOI：
10.1111/j.1747-0803.2011.00591.x
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发表时间：
2012
影响因子：
0.3
通讯作者：
Wessel
中科院分区：
文献类型：
--
作者：
Löbel;Grosser;Wessel
目的：提出了一份用于评估父母对先天性心脏病(CHD)知识的问卷--《汉诺威先天性心脏病父母知识调查表》，并报告了第一个结果。该问卷由8个子量表组成，涵盖心脏功能常识、治疗前后儿童个体冠心病的体征和症状、个体冠心病的类型和治疗、冠心病的管理、恶化、心内膜炎和体力活动的监测。设计137名母亲在孩子接受冠心病手术后立即完成了问卷。大多数维度的知识是令人满意的，但在心内膜炎和恶化监测等重要子量表方面的知识相当差。结论：问卷涵盖了一系列相关主题，考虑到了个别冠心病。家长对部分地区的冠心病知识知晓率较高，但对预防行为的了解程度较低。这一点需要改进，以使父母能够承担他们应承担的治疗后护理份额。
Objective.The “Hannover Inventory of Parental Knowledge of Congenital Heart Disease,” a questionnaire for the assessment of knowledge about congenital heart disease (CHD) for use in parents, is presented, and the first results are reported. It consists of eight subscales covering general knowledge of cardiac functioning, signs and symptoms of the child's individual CHDbeforeandaftertreatment, type of individual CHD and treatment, management of CHD, surveillance of deterioration, endocarditis, and physical activity.Design.One hundred thirty‐seven mothers completed the questionnaire immediately after their children underwent CHD surgery.Results.The questionnaire has satisfactory psychometric properties. Knowledge on most dimensions was satisfactory, but it was rather poor with respect to important subscales asendocarditisandsurveillance of deterioration.Conclusions.The questionnaire covers a range of relevant topics by taking the individual CHD into account. Parents have satisfactory knowledge of CHD in some areas, but knowledge about preventive behaviors turned out as rather poor. This needs to be improved in order to make parents capable to take their share of after‐treatment care.
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