Conceptualization and measurement of quality of life in dementia: The dementia quality of life instrument (DQoL)
Conceptualization and measurement of quality of life in dementia: The dementia quality of life instrument (DQoL)
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DOI：
10.1093/geront/39.1.25
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发表时间：
1999-02-01
期刊：
影响因子：
5.7
通讯作者：
Walton, P
中科院分区：
文献类型：
--
作者：
Brod, M;Stewart, AL;Walton, P
由于后勤、概念和实际问题，对痴呆症患者生活质量（QoL）的直接评估在很大程度上被忽视。本文提出了痴呆症特定疾病的生活质量概念框架。基于这一概念，开发了一种包含 29 项的工具，旨在通过直接采访痴呆症患者来评估生活质量，并在 99 名参与者身上进行了测试。数据表明该仪器是可靠的并显示出有效性的证据。几乎所有参与者（96%）都能正确回答问题。因此，轻度至中度痴呆症患者可以被认为是其主观状态的良好信息提供者，为考虑患者反应而不是替代指标作为评估痴呆症患者生活质量的金标准铺平了道路。
Direct assessment of quality of life (QoL) of persons with dementia has largely been ignored due to logistical, conceptual and practical issues. This article presents a disease-specific conceptual framework of QoL for dementia. Based on this conceptualization, a 29-item instrument designed to assess QoL by direct interview with dementia patients was developed and tested on 99 participants. The data show that the instrument is reliable and shows evidence of validity. Nearly all participants (96%) were able to respond to questions appropriately. Thus, persons with mild to moderate dementia can be considered good informants of their own subjective states, paving the way to consider patient responses rather than proxy measures as the gold standard for assessing QoL for persons with dementia.