What Do People Affected by Cancer Think About Electronic Health Information Exchange? Results From the 2010 LIVESTRONG Electronic Health Information Exchange Survey and the 2008 Health Information National Trends Survey
What Do People Affected by Cancer Think About Electronic Health Information Exchange? Results From the 2010 LIVESTRONG Electronic Health Information Exchange Survey and the 2008 Health Information National Trends Survey
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DOI：
10.1200/jop.2011.000324
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发表时间：
2011-07-01
影响因子：
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通讯作者：
Hesse, Bradford W.
中科院分区：
文献类型：
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作者：
Beckjord, Ellen B.;Rechis, Ruth;Hesse, Bradford W.
目的：《经济和临床健康卫生信息技术法》（HITECH）强调电子卫生信息交换（EHIE）。关于病人需求的研究，特别是那些接触癌症的病人，一直很少。在这里，我们提出的数据对EHIE的喜好之间接触的癌症相比，全国代表性样本的美国成年人。（兰斯·阿姆斯特朗基金会）和一个双框架，通过国家癌症研究所的健康信息国家趋势调查（HINTS）收集的全国代表性成年人样本。LIVESTRONG EHIE调查共收集了8，411名受访者的样本，其中包括433名目前正在接受癌症治疗的患者，298名癌症慢性病患者，2，343名治疗后幸存者和5，337名无癌症史的患者。HINTS样本包括7，674名代表普通成年人的受访者。比较结果显示，在癌症相关人群中，尤其是在那些患有癌症的慢性病患者中，对EHIE的价值有着强烈的积极看法。只有大约一半的普通人群对EHIE表现出类似程度的热情。当被问及EHR的具体功能时，受访者首先重视隐私和安全，其次是改善护理协调和数据共享providers.Conclusion：这些数据表明，EHIE的需求在那些接触癌症可能比一般人群。这一点特别重要，因为受癌症影响的人是最经常使用我们的卫生保健系统的人，也是最危险的人。
Purpose: The Health Information Technology for Economic and Clinical Health (HITECH) Act has placed an emphasis on electronic health information exchange (EHIE). Research on needs of patient, especially those touched by cancer, has been sparse. Here, we present data on preferences for EHIE among those touched by cancer compared with a nationally representative sample of American adults.Methods: Two surveys were used: an online survey designed by LIVESTRONG (the Lance Armstrong Foundation) and a dual-frame, nationally representative sample of adults collected through the National Cancer Institute's Health Information National Trends Survey (HINTS).Results: The LIVESTRONG EHIE survey yielded a sample of 8,411 respondents, including 433 currently receiving cancer treatment, 298 living with cancer as a chronic disease, 2,343 post-treatment survivors, and 5,337 with no history of cancer. The HINTS sample consisted of 7,674 respondents representative of the general adult population. Comparisons revealed a strong positive view of the value of EHIE within the cancer-relevant groups, especially among those living with cancer as a chronic disease. Only about half of the general population showed a similar degree of enthusiasm for EHIE. When asked about specific functions for EHRs, respondents valued privacy and security above all, followed by improving care coordination and data sharing between providers.Conclusion: These data suggest that the EHIE needs among those touched by cancer may be greater than in the general population. This is particularly important because people affected by cancer are among those who access our health care system most frequently and who have the most at stake.