Preferences for end of life: views of hospice patients, family carers, and community nurse specialists
Preferences for end of life: views of hospice patients, family carers, and community nurse specialists
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DOI：
10.12968/ijpn.2011.17.5.251
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发表时间：
2011-01-01
影响因子：
1
通讯作者：
King, Annette
中科院分区：
文献类型：
--
作者：
Holdsworth, Laura;King, Annette
进行了一项探索性定性研究，目的是从临终关怀患者、护理人员和临终关怀社区护士的角度确定讨论和记录对死亡地点的偏好的问题。从英格兰东南部的三个临终关怀医院中抽取了有目的的样本，其中包括六名社区护士专家 (CNS)、五名患者、五名护理人员和五名失去亲人的护理人员。患者和护理人员表示，讨论自己的偏好对他们来说很重要，但他们也承认讨论死亡很困难。 CNS 表示，存在一些阻碍临终讨论的障碍，并且讨论偏好并不总是护理计划的主要目标。服务使用者，特别是失去亲人的护理人员认为，更多地了解死亡过程的预期、了解其亲属的意愿以及了解临终关怀和姑息治疗的作用可以改善导致死亡的事件的体验。
An exploratory qualitative study was undertaken with the aim of identifying issues around discussing and recording preferences on place of death from the perspective of hospice patients, carers, and hospice community nurses. A purposive sample was selected from three hospices in the south east of England of six community nurse specialists (CNSs), five patients, five carers, and five bereaved carers. The patients and carers said it was important to them to discuss their preferences, but they acknowledged that discussing dying was difficult. The CNSs stated that there were several barriers that inhibited end-of-life discussions and that discussing preferences was not always a primary goal of care planning. It was felt among the service users, particularly the bereaved carers, that having more knowledge about what to expect of the dying process, knowing their relative's wishes, and understanding the role of hospice and palliative care could improve the experience of events leading up to death.