'I don't know what to do or where to go'. Experiences of accessing healthcare support from the perspectives of people living with Long Covid and healthcare professionals: A qualitative study in Bradford, UK.
'I don't know what to do or where to go'. Experiences of accessing healthcare support from the perspectives of people living with Long Covid and healthcare professionals: A qualitative study in Bradford, UK.
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DOI：
10.1111/hex.13687
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发表时间：
2023-02
影响因子：
3.2
通讯作者：
Sheard, Laura
中科院分区：
文献类型：
--
作者：
Baz, Sarah A.;Fang, Chao;Carpentieri, J. D.;Sheard, Laura
2022年10月，据估计，英国有230万人自我报告患有长期新冠肺炎（LC）。许多人报告没有得到足够的医疗支持。目前缺乏研究，提供了一个深入的探索与LC在获得医疗支持的人所面临的障碍。重要的是要了解这些障碍，为那些经历LC提供更好的支持，护理和建议。了解LC患者在获得初级、二级和专科医疗保健支持方面面临的障碍。与生活在布拉德福德的LC患者进行了40次访谈，同时与布拉德福德医疗机构提供LC支持的医疗保健专业人员（HCP）进行了12次访谈。访谈进行了分析，使用自反性专题分析。患有LC的人在获得LC支持的医疗服务方面存在很大的困难。我们将参与者的医疗保健获得体验分为五种主要类型：（1）无法获得初级保健，（2）获得初级保健但（感知）获得的支持不足，（3）极端坚持，（4）主流医疗保健的替代品和（5）积极的体验。严重缺乏获得LC专家服务的机会。少数民族参与者面临着不信任和对服务的恐惧，这进一步阻碍了他们获得支持。HCP讨论了提供服务的系统性障碍。这些经验体现在因大流行而进一步加剧的宏观结构问题中。为了更好地支持LC患者，必须解决获得医疗保健支持所面临的障碍。重要的是，需要改善全科医生的准入;特别是因为全科医生是支持LC患者的第一线。一个病人和公众参与小组定期参与该项目。
In October 2022, it was estimated 2.3 million people in the United Kingdom have self‐reported Long Covid (LC). Many people have reported not receiving adequate healthcare support. There is a lack of research which provides an in‐depth exploration of the barriers faced by people with LC in accessing healthcare support. It is important to understand these barriers to provide better support, care and advice for those experiencing LC. To understand the barriers faced in accessing primary, secondary and specialist healthcare support for people with LC. 40 interviews were conducted with people living with LC in Bradford alongside 12 interviews with healthcare professionals (HCPs) providing LC support in Bradford healthcare settings. Interviews were analysed using reflexive thematic analysis. People living with LC had a large degree of difficulty in accessing healthcare services for LC support. We categorized the healthcare access experiences of participants into five main types: (1) being unable to access primary care, (2) accessing primary care but receiving (perceived) inadequate support, (3) extreme persistence, (4) alternatives to mainstream health care and (5) positive experiences. There was a severe lack of access to specialist LC services. Ethnic minority participants faced a further barrier of mistrust and fear of services deterring them from accessing support. HCPs discussed systemic barriers to delivering services. Experiences were embedded in macrostructural issues further exacerbated by the pandemic. To better support people with LC, the barriers faced in accessing healthcare support must be addressed. Of significance, improvements to general practitioner access are required; especially as GPs are the first line of support for people living with LC. A patient and public involvement group is engaged at regular intervals in the project.
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影响因子：
3.2
作者：
Ireson, Jane;Taylor, Amy;Richardson, Ed;Greenfield, Beatrice;Jones, Georgina
通讯作者：
Jones, Georgina
DOI：
10.1111/hex.13240
发表时间：
2021-08
期刊：
Health expectations : an international journal of public participation in health care and health policy
影响因子：
--
作者：
Lockyer B;Islam S;Rahman A;Dickerson J;Pickett K;Sheldon T;Wright J;McEachan R;Sheard L;Bradford Institute for Health Research Covid-19 Scientific Advisory Group
通讯作者：
Bradford Institute for Health Research Covid-19 Scientific Advisory Group
影响因子：
2.2
作者：
Ganguli-Mitra, Agomoni;Qureshi, Kaveri;Curry, Gwenetta D.;Meer, Nasar
通讯作者：
Meer, Nasar
影响因子：
2.9
作者：
Castro-Avila AC;Jefferson L;Dale V;Bloor K
通讯作者：
Bloor K
DOI：
10.3390/ijerph182413191
发表时间：
2021-12-14
影响因子：
--
作者：
Fowler-Davis S;Young R;Maden-Wilkinson T;Hameed W;Dracas E;Hurrell E;Bahl R;Kilcourse E;Robinson R;Copeland R
通讯作者：
Copeland R