Beyond “Genetic Discrimination”: Toward the Broader Harm of Geneticism

Beyond “Genetic Discrimination”: Toward the Broader Harm of Geneticism
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超越“基因歧视”:走向遗传学更广泛的危害

DOI:
10.1111/j.1748-720x.1995.tb01376.x
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发表时间:
1995
期刊:
The Journal of Law, Medicine & Ethics
影响因子:
--
通讯作者:
S. Wolf
S. Wolf
中科院分区:
--
文献类型:
--
作者:
S. Wolf

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目前基因知识的爆炸和基因检测的迅速扩散正确地引起了人们的担忧,即我们正在接近一个未来,人们将根据基因信息被贴上标签并处于不利地位。事实上,有些人已经受到伤害,包括拒绝提供医疗保险。这种担忧引发了大量的分析。然而,几乎所有的研究都是在"基因歧视"的标题下探讨基因劣势的问题。这个标题对于手头的任务来说远远不够。它忽视了多年来关于种族和性别的评论,这些评论表明反歧视分析作为分析框架和纠正工具的局限性。关于遗传劣势的讨论太多了,就好像种族和性别学者没有花几十年时间批评和发展反歧视理论一样。事实上,种族、性别和遗传之间存在多重联系。多萝西·罗伯茨讨论了种族主义和遗传学之间的历史联系,而她和其他人已经开始绘制性别和遗传学之间的联系。
The current explosion of genetic knowledge and the rapid proliferation of genetic tests has rightly provoked concern that we are approaching a future in which people will be labeled and disadvantaged based on genetic information. Indeed, some have already suffered harm, including denial of health insurance. This concern has prompted an outpouring of analysis. Yet almost all of it approaches the problem of genetic disadvantage under the rubric of “genetic discrimination.” This rubric is woefully inadequate to the task at hand. It ignores years of commentary on race and gender demonstrating the limits of antidiscrimination analysis as an analytic framework and corrective tool. Too much discussion of genetic disadvantage proceeds as if scholars of race and gender had not spent decades critiquing and developing antidiscrimination theory. Indeed, there are multiple links among race, gender, and genetics. Dorothy Roberts has discussed the historical links between racism and genetics, while she and others have begun to map connections between gender and genetics.
保险和基因检测:我们现在在哪里?
DOI: --
发表时间: 1993
影响因子: 9.8
作者:
Ostrer,H;Allen,W;Crandall,LA;Moseley,RE;Dewar,MA;Nye,D;McCrary,SV
通讯作者: McCrary,SV