Putting patient and family voice back into measuring quality of care for the dying.
Putting patient and family voice back into measuring quality of care for the dying.
复制标题
将患者和家属的声音重新纳入衡量临终者护理质量的过程中。
DOI：
10.1080/0742-969x.1999.11882936
复制
发表时间：
1999
期刊：
影响因子：
--
通讯作者：
J. Teno
中科院分区：
文献类型：
--
作者：
J. Teno
对于那些患有严重慢性病并接近生命尽头的人来说，护理质量和生活质量发生了重大变化。当一个人死去时，生命呈现出新的形态价值观改变了，曾经被忽视的东西变得更加重要。现有的护理质量措施不关注优先级的变化或获得新意义的维度（例如，灵性和超越）。在解决姑息治疗证据基础不足、改善护理缺陷和让机构或保健系统对护理质量负责方面，一个重要的障碍是缺乏有效和可靠的衡量工具。在这篇文章中，概述了正在进行的研究工作，开发测量工具，将利用病人和家庭的角度来衡量护理质量。
Quality of care and quality of life change substantially for those with a serious chronic illness and nearing the end of their lives. As one dies, life takes on new shape-values change and things once ignored become more important. Existing quality of care measures do not attend to the changes in priorities or to dimensions that acquire new significance (e.g., Spirituality and transcendence). An important impediment to addressing the inadequacies in the evidence base for palliative care, improving shortcomings of care, and holding institutions or health care systems accountable for the quality of care is the lack of valid and reliable measurement tools. In this article, an overview is presented of an ongoing research effort to develop measurement tools which will utilize the patient and family perspective to measure the quality of care.