Analysis of patients' narratives posted on social media websites on benfluorex's (Mediator®) withdrawal in France
Analysis of patients' narratives posted on social media websites on benfluorex's (Mediator®) withdrawal in France
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DOI：
10.1111/jcpt.12103
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发表时间：
2014-02-01
影响因子：
2
通讯作者：
Bagheri, H.
中科院分区：
文献类型：
--
作者：
Abou Taam, M.;Rossard, C.;Bagheri, H.
关于健康问题的网站和讨论列表是网络上最受欢迎的资源之一。社交媒体网站上报告的使用经验可以提供有关药物及其不良反应（ADR）的有用信息。关于药物的利益/危害平衡的明确沟通对于正确使用药物非常重要。一些数据表明，沟通（警告或警告）是困难的。本研究的目的是探索互联网作为一个来源的数据对患者的感知风险与benfluorex和更广泛的媒体covery.MethodsThree的影响，选择了法国网站：Doctissimo，Atoute.org被认为是最知名的，访问网站在法国的健康问题和Vivelesrondes（Tubbies万岁）超重的人。选择了三个时期：（1）2009年11月之前（即本氟雷司停药之前），（2）2009年11月至2010年11月之间（当本氟雷司的瓣膜病风险出现在社交媒体上时）和（3）2010年11月之后。结果和讨论分析了220篇初始帖子。这导致660个二级员额，对这些员额进行了单独分析。在第1阶段，分析了114份初始发布，主要涉及药物疗效（72%）。在第2阶段，分析了42份初始发布，主要涉及ADR或警告（73%）。在第3阶段，分析了64个初始帖子;最常见的表达是针对医疗保健系统的愤怒（58%）和对心血管ADR的焦虑（30%）。在线消费者发帖显示，媒体报道后，消费者的看法发生了巨大变化。什么是新的和结论这项研究表明，网站数据的分析可以告知药物不良反应。社交媒体对于传播药物不良反应信息和评估消费者行为及其风险认知十分重要。
What is known and objectiveWebsites and discussion lists on health issues are among the most popular resources on the Web. Use experience reported on social media websites may provide useful information on drugs and their adverse reactions (ADRs). Clear communication on the benefit/harm balance of drugs is important to inform proper use of drugs. Some data have shown that communication (advisories or warnings) is difficult. This study aimed to explore the Internet as a source of data on patients' perception of risk associated with benfluorex and the impact of wider media coverage.MethodsThree French websites were selected: Doctissimo, Atoute.org considered the best-known and visited website in France for health questions and Vivelesrondes (Long live the Tubbies) for overweight people. Three periods were chosen: (1) before November 2009 (i.e. before benfluorex withdrawal), (2) between November 2009 and November 2010 (when the risk of valvulopathy with benfluorex appeared in social media) and (3) after November 2010.Results and discussionTwo hundred twenty initial postings were analysed. These lead to 660 secondary postings which were analysed separately. In period 1, 114 initial postings were analysed, mostly concerning efficacy of the drug (72%). In period 2, 42 initial postings were analysed involving mainly ADRs or warnings (73%). In period 3, 64 initial postings were analysed; most frequent expressing anger directed at the healthcare system (58%) and anxiety about cardiovascular ADRs (30%). Online consumer postings showed that there were drastic changes in consumers' perceptions following media coverage.What is new and conclusionThis study suggests that analysis of website data can inform on drug ADRs. Social media are important for communicating information on drug ADRs and for assessing consumer behaviour and their risk perception.