Exploring the Adult Life of Men and Women With Fragile X Syndrome: Results From a National Survey
Exploring the Adult Life of Men and Women With Fragile X Syndrome: Results From a National Survey
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DOI：
10.1352/1944-7558-116.1.16
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发表时间：
2011-01-01
影响因子：
2.1
通讯作者：
Bailey, Donald B., Jr.
中科院分区：
文献类型：
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作者：
Hartley, Sigan L.;Seltzer, Marsha Mailick;Bailey, Donald B., Jr.
作者利用全国家庭调查的数据描述了成年人的生活（即，居住，就业，日常生活，友谊和休闲活动所需的援助水平）的328名成年人与FMR 1基因的完全突变，并确定在这些领域的独立性相关的特征。功能技能水平是男性成年生活中独立性的最强预测因素，而适当互动的能力是女性最强的预测因素。同时发生的心理健康状况影响了男性和女性成年生活的独立性，特别是男性的自闭症谱系障碍和女性的情感问题。对脆性X综合征成年人的服务不仅应该针对功能技能，还应该针对人际交往技能和共同发生的心理健康状况。
Using data from a national family survey, the authors describe the adult lives (i.e., residence, employment, level of assistance needed with everyday life, friendships, and leisure activities) of 328 adults with the full mutation of the FMR1 gene and identify characteristics related to independence in these domains. Level of functional skills was the strongest predictor of independence in adult life for men, whereas ability to interact appropriately was the strongest predictor for women. Co-occurring mental health conditions influenced independence in adult life for men and women, in particular, autism spectrum disorders for men and affect problems for women. Services for adults with fragile X syndrome should not only target functional skills but interpersonal skills and co-occurring mental health conditions.