The equity turn in palliative and end of life care research: Lessons from the poverty literature
The equity turn in palliative and end of life care research: Lessons from the poverty literature
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DOI：
10.1111/soc4.12969
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发表时间：
2022-03-15
影响因子：
2.7
通讯作者：
Richards, Naomi
中科院分区：
文献类型：
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作者：
Richards, Naomi
姑息治疗和临终关怀研究人员正在被“唤醒”，他们需要开始采用一个公平的框架，并更多地关注健康的社会决定因素如何影响人们在生命的尽头。在COVID-19大流行期间，承认系统性卫生不公平变得更加重要。我认为，在这个新的公平驱动的议程，学习需要纳入几十年的工作在批判性的贫困研究，批评贫困的概念。我强调了这些批评中最相关的，并主张将这些论点转移和翻译到该领域工作的学者的姑息治疗和临终关怀研究中。正如贫困研究在20世纪90年代被批评为理论上的弱点和不加批判的非理性主义一样，姑息治疗和生命终结研究需要超越其几乎完全集中在测量上的关注，以显示对人们死亡的结构性背景的更深层次的认识，甚至致力于改变。我认为，正如临界贫困学者和初级保健研究人员主张一个更公平的政治经济体系，所以姑息和生命结束的研究人员不仅需要“醒来”，但也“站起来”，变得更加政治化。
Palliative and end of life care researchers are being issued 'wake up' calls that they need to start adopting an equity framework and pay more attention to how the social determinants of health impact people at the end of their lives. Acknowledging systemic health inequities has become even more important during the COVID-19 pandemic. I argue that within this new equity-driven agenda, learning needs to be incorporated from decades of work within critical poverty studies which critiques the very concept of poverty. I highlight the most relevant of these critiques and advocate for the transfer and translation of these arguments into palliative and end of life care research by scholars working in the field. Just as poverty studies was critiqued in the 1990s for theoretical weakness and an uncritical empiricism, so palliative care and end of life research needs to go beyond its almost exclusive concentration on measurement to show a deeper awareness of, and even a commitment to changing, the structural context within which people are dying. I argue that just as critical poverty scholars and primary care researchers have argued for a fairer political-economic system, so palliative and end of life researchers need to not only 'wake up' but also 'stand up' and become more political.