Family life when a parent is diagnosed with cancer: impact of a psychosocial intervention for young children
Family life when a parent is diagnosed with cancer: impact of a psychosocial intervention for young children
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DOI：
10.1111/ecc.12018
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发表时间：
2013-03-01
影响因子：
2.1
通讯作者：
McCaughan, E.
中科院分区：
文献类型：
--
作者：
Semple, C. J.;McCaughan, E.
当父母被诊断出患有癌症时，可能会对家庭产生深远的影响，特别是对孩子。本文报告了父母及其子女患癌症的经历，以及心理社会干预对父母患癌症的幼儿的影响。采用定性设计，数据来自分别有儿童(n=7)和父母(n=6)的焦点小组。对提供干预的专业人士进行一对一访谈(n=2)。研究结果表明，父母往往是孩子了解父母癌症的方式、时间和背景的守门人。许多父母表示，在考虑与孩子沟通癌症问题时，他们缺乏信心和技能。父母表示，需要专业投入，主要是因为他们孩子的行为发生了变化。孩子们对癌症有许多幻想和误解。这种心理干预使他们的父母患癌症的经历正常化。它还提高了儿童对癌症的理解，并为他们提供了应对策略。专业人士认为，这种干预改善了家庭沟通，并促进了情感的讨论。对于父母患有癌症的孩子来说，开放的沟通是至关重要的，但父母需要支持和资源，以促进在被诊断为癌症时的家庭应对。
When a parent is diagnosed with cancer it can have a profound impact on the family, especially the children. This paper reports on the experience of parental cancer for parents' and their children and the impact of a psychosocial intervention for young children whose parent has cancer. Using a qualitative design, data were generated from separate focus groups with children (n = 7) and parents (n = 6). One-to-one interviews were conducted with professionals delivering the intervention (n = 2). Findings indicated that parents are often the gatekeeper to how, when and the context in which children learn about parental cancer. Many parents expressed a lack of confidence and skills as they considered communicating with their children about cancer. Parents stated the need for professional input mainly due to changes in their children's behaviour. Children had a number of fantasies and misconceptions surrounding cancer. This psychological intervention normalized their experience of parental cancer. It also improved children's understanding of cancer and equipped them with coping strategies. Professionals perceived the intervention led to improved family communication and promoted discussion of emotions. Open communication is pivotal for children whose parents have cancer but parents need supported and resourced to promote family coping when diagnosed with cancer.