Community engagement and ethical global health research.
Community engagement and ethical global health research.
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DOI：
10.1080/11287462.2019.1703504
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发表时间：
2020-01-01
期刊：
影响因子：
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通讯作者：
Cheah, Phaik Yeong
中科院分区：
文献类型：
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作者：
Adhikari, Bipin;Pell, Christopher;Cheah, Phaik Yeong
社区参与日益被认为是医学研究的一个关键因素，这是伦理学家建议的，是研究资助者的要求，也是伦理准则所提倡的。社区参与的好处往往以工具性的方式强调，特别是在促进研究的征聘和留用方面。在道德良好做法方面，社区参与的价值受到的重视较少，目标往往是隐含的，而不是明确表达的。本文明确概述了社区参与如何通过补充知情同意和独立伦理审查等现有既定要求来促进全球卫生伦理研究。首要和相互关联的领域是：(1)尊重个人、社区和利益相关者；(2)建立信任和社会关系；（三）确定适当的利益；尽量减少风险、负担和剥削；(4)支持同意程序；(5)了解漏洞和研究人员的义务；(6)获得许可、批准和建立合法性；(7)实现招聘和保留目标。
Community engagement is increasingly recognized as a critical element of medical research, recommended by ethicists, required by research funders and advocated in ethics guidelines. The benefits of community engagement are often stressed in instrumental terms, particularly with regard to promoting recruitment and retention in studies. Less emphasis has been placed on the value of community engagement with regard to ethical good practice, with goals often implied rather than clearly articulated. This article outlines explicitly how community engagement can contribute to ethical global health research by complementing existing established requirements such as informed consent and independent ethics review. The overarching and interlinked areas are (1) respecting individuals, communities and stakeholders; (2) building trust and social relationships; (3) determining appropriate benefits; minimizing risks, burdens and exploitation; (4) supporting the consent process; (5) understanding vulnerabilities and researcher obligations; (6) gaining permissions, approvals and building legitimacy and (7) achieving recruitment and retention targets.