A questionnaire to assess olfactory rehabilitation for laryngectomized patients（Provox voice prosthsis users） in Japan
A questionnaire to assess olfactory rehabilitation for laryngectomized patients（Provox voice prosthsis users） in Japan
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日本喉切除患者（Provox 发声假体使用者）嗅觉康复情况评估问卷
DOI：
10.1016/j.anl.2018.01.015
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发表时间：
2018
影响因子：
1.7
通讯作者：
Ujimoto Konomi
中科院分区：
文献类型：
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作者：
Yukinobu Ishikawa,Yukiko Yanagi,Michi Suzuki;Ujimoto Konomi
目的采用问卷调查法对日本喉切除患者的嗅觉功能及嗅觉康复现状进行调查。我们邮寄问卷给一个日本喉切除患者团体(非营利性组织YOUSAY-KAI)的190名成员。调查内容包括：(1)基本资料(年龄、性别、咽喉发音方法等)；(2)有关嗅觉康复的问题，例如个人的嗅觉康复经验、从喉切除至开始嗅觉康复的天数、康复地点(即医院或病人协会)；(3)自由评论；(4)自填气味问卷(SAOQ)。其中，有效问卷105份。所有105名应答者都使用Provox语音假体作为喉音发音方法。仅有4.7%(5/105)的患者在医院接受了嗅觉康复。自由评论栏目中的许多评论都包括对嗅觉康复的要求，比如“我想知道我们在哪里可以进行嗅觉康复”和“如果嗅觉恢复，我想进行嗅觉康复。”康复组SAOQ评分(42.5%)显著高于非康复组(22.1%)(P<0.05)。SAOQ评分与从喉切除到开始康复的天数无相关性(r=0.08，p=0.76)。结论日本患者对嗅觉康复的需求很大，但这种疗法在日本并不广泛。值得注意的是，SAOQ评分显示嗅觉康复可能会有效果，即使它是在喉切除后开始的。我们认为，当患者选择语音假体时，除非他们分别接受嗅觉康复和言语康复，否则他们的嗅觉会恶化。因此，对于从未接受过嗅觉康复的喉切除患者以及计划接受喉切除的患者，实施嗅觉康复是必要的。
ObjectiveWe used a questionnaire to investigate olfactory function and the present state of olfactory rehabilitation for laryngectomized patients in Japan.MethodsThis study was conducted using a questionnaire survey. We mailed questionnaires to 190 members of a Japanese laryngectomized patient group (the nonprofit organization YOUSAY-KAI). The survey queried the following items: (1) basic information (age, sex, alaryngeal speech method, etc.); (2) questions about olfactory rehabilitation, such as the individual’s experience of olfactory rehabilitation, the number of days from laryngectomy to the start of olfactory rehabilitation, and the location of rehabilitation (i.e., hospital or patient association); (3) free comments; and (4) the self-administered Odor Questionnaire (SAOQ).ResultsWe received 121/190 questionnaires by the submission deadline. Of these, 105 questionnaires were valid. All 105 responders used the Provox voice prosthesis as the alaryngeal speech method. Only 4.7% (5/105) of the patients received olfactory rehabilitation in hospitals. Many comments in the free comment column included demands for olfactory rehabilitation such as “I want to know where we can have olfactory rehabilitation” and “I want to have rehabilitation if olfaction recovers.” The SAOQ score was significantly higher in the rehabilitation group (mean, 42.5%) compared to the nonrehabilitation group (mean, 22.1%) (p < 0.05). There was no correlation between the SAOQ score and the number of days from laryngectomy to the start of rehabilitation (r= 0.08, p = 0.76).ConclusionPatient demand for olfactory rehabilitation is strong, but this therapy is not widely offered to laryngectomized patients in Japan. Notably, the SAOQ scores showed that olfactory rehabilitation may have an effect, even if it is initiated after laryngectomy. We believe that when patients choose voice prosthesis for speech, their olfaction deteriorates unless they undergo olfactory rehabilitation separately from speech rehabilitation. It is therefore necessary to administer olfactory rehabilitation for laryngectomized patients who have never received olfactory rehabilitation, as well as for patients scheduled to undergo laryngectomy.